The Idaho Chapter of the National Bleeding Disorders Foundation (NBDF Idaho) and the Snake River Hemophilia & Bleeding Disorders Association (Snake River) have announced plans to merge, forming a single statewide organization that will operate…
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Learn About siRNA TreatmentA new type of treatment for people with bleeding disorders is called siRNA therapy. In this 3D video, we show how siRNA treatment works within the…
Hemophilia is a rare lifelong condition which can be potentially life-threatening. Parents bare a significant responsibility for delivery of medical care because the treatment for hemophilia begins early in life for children within the home setting…
Kymm Shaw is the program manager of the National Bleeding Disorders Chapter Idaho, where she is focused on education and programs. Before joining NBDF, she proudly served as the executive director of Snake River Hemophilia & Bleeding Disorders…
Jacob Murdock, current senior executive director of the Nevada Chapter of the National Bleeding Disorders Foundation (NBDF Nevada), will also assume leadership of the organization’s Nebraska chapter, NBDF Nebraska. NBDF Nebraska is one of six…
On May 22nd, Representatives Julie Johnson (D-TX-32), Joe Wilson (R-SC-02), and Rep. Sarah McBride (D-DE-At Large) introduced the Fostering Effective Diagnosis and Treatment for Underserved Populations with Bleeding Disorders Act (FED UP with…
Federal: Additional Support for FY27 Funding for Federal Bleeding Disorders Programs During Washington Days, NBDF asked Congressional offices to support funding for federal bleeding disorders…
Join NBDF and MASAC expert clinicians to learn about rebalancing agents, a new class of therapies for bleeding disorders. This session will help patients and caregivers understand how these treatments work, what to expect, and how to engage in…
The words we use in healthcare can either support understanding or create barriers. This session explores how language choices, health literacy demands, and communication practices affect patient comprehension, trust, and equitable access to care.…
Language and literacy play a critical role in who understands, trusts, and ultimately participates in research and clinical trials. This session examines how communication practices in research design, recruitment, and consent can either exclude or…