Kymm Shaw is the Program Manager of the National Bleeding Disorders Chapter Idaho, where she is focused on education and programs. Before joining NBDF, she proudly served as the executive director of Snake River Hemophilia & Bleeding Disorders…
Jacob Murdock, current senior executive director of the Nevada Chapter of the National Bleeding Disorders Foundation (NBDF Nevada), will also assume leadership of the organization’s Nebraska chapter, NBDF Nebraska. NBDF Nebraska is one of six…
On May 22nd, Representatives Julie Johnson (D-TX-32), Joe Wilson (R-SC-02), and Rep. Sarah McBride (D-DE-At Large) introduced the Fostering Effective Diagnosis and Treatment for Underserved Populations with Bleeding Disorders Act (FED UP with…
Federal: Additional Support for FY27 Funding for Federal Bleeding Disorders Programs During Washington Days, NBDF asked Congressional offices to support funding for federal bleeding disorders…
Join NBDF and MASAC expert clinicians to learn about rebalancing agents, a new class of therapies for bleeding disorders. This session will help patients and caregivers understand how these treatments work, what to expect, and how to engage in…
The words we use in healthcare can either support understanding or create barriers. This session explores how language choices, health literacy demands, and communication practices affect patient comprehension, trust, and equitable access to care.…
Language and literacy play a critical role in who understands, trusts, and ultimately participates in research and clinical trials. This session examines how communication practices in research design, recruitment, and consent can either exclude or…
Language, Literacy, and Leading the Way Serves as the foundational anchor session for the summit. It frames the core objectives of the event, outlining how health literacy serves as a gateway to equity and setting a strategic vision…
Community voices offer critical insight into how language and literacy shape real experiences with care, research, and systems. This panel brings together chapter directors, healthcare providers, and individuals living with a bleeding disorder who…
How we communicate is a critical part of how care is delivered. This session explores intentional communication as a tool for building trust, reducing harm, and honoring patient dignity. Participants will examine how mindful, empathetic…