Breaking Barriers: Self-Reported Diagnosis Delays in Bleeding Disorder Patients by Birth Sex
The Community Voices in Research registry is community powered and collects information about what it is like to live with a bleeding disorder from those who know these conditions the best: lived experience experts. This research describes a sample…
Demographic and Socioeconomic Characteristics of Females in the Community Voices in Research Registry
The Community Voices in Research registry is powered by the community and collects information about what it is like to live with a bleeding disorder from the people who know these conditions best: those with lived experience. This study describes a…
Pavan K. Bendapudi
At the time of his application, Dr. Pavan Bendapudi was finishing his third year of adult hematology/oncology training at the combined Dana Farber Cancer Institute- Massachusetts General Hospital (DFCI-MGH) fellowship program. After finishing his…
Women & Girls with Bleeding Disorders: Diagnosis, Treatment & Finding Care
Episode 1: Women & Girls with Bleeding DisordersEach month, we’re sitting down with the experts in our community for some real talk. Hosted by actor and advocate Greg Grunberg, Bleeding.org Conversations features discussions…
Effect of Exercise on Bone Mineral Density and Strength in Factor VIII Deficient Mice
The study will characterize the skeletal health of factor VIII deficient mice with and without exercise and compare these two groups to each other and to historic results from wild-type mice. We hypothesize that exercise will improve the skeletal…
A Feasibility and Usability Study of a Nursing-Orchestrated, Customized Immersive 3 Dimensional Virtual Reality Environment in Children with Hemophilia Undergoing Routine Intravenous Procedures
The purpose of this project is to request support for the development of a Virtual Reality Environment (VRE) study program for pediatric patients diagnosed with hemophilia. The VRE program proposed was developed and created for children and includes…
Jessica Garcia
Dr. Jessica Garcia is currently a pediatric hematology/oncology fellow at the Medical College of Wisconsin/Children's Hospital of Wisconsin. Her clinical mentor is Dr. Joan Gill, Director of the Comprehensive Center for Bleeding Disorders (CCBD) in…
Yasmina Abajas
Dr. Yasmina Abajas is a clinical assistant professor in pediatric hematology/oncology at the University of North Carolina at Chapel Hill, where she also completed her subspecialty training in 2016. A native of Miami, FL, she attended medical school…
Exercise Versus DDAVP in Patients with Mild Hemophilia A - Which Is Better and Do They Work Additively in Improving Hemostasis?
Preliminary work done by Dr. Riten Kumar and colleagues has documented that moderate intensity exercise is associated with a significant improvement in multiple coagulation parameters in post-adolescent males with mild-moderate hemophilia A. As a…
Mothers' Perceived Vulnerability, Protective Behaviors and Stress in Relation to Their Sons with Hemophilia
It is unknown if there are differences in attitudes and behaviors between mothers of sons with hemophilia who have a known family history of hemophilia compared to mothers without a known family history. To capture these differences, this study will…