Dr. Angela Weyand is a pediatric hematology/oncology fellow at The University of Michigan, Mott Children's Hospital. She is a native of Kansas City, Kansas and a graduate of Northwestern University in Evanston, Illinois. Dr. Weyand attended medical…
CHAPTER 1 Access to Genetic Therapies for People with Hemophilia EXPERTS: Aaron Blocker1, Nathan Schaefer1, Amy Dunn 2,3. 1. National Bleeding Disorders Foundation,2. …
CHAPTER 1 USP Drug Classification and Coverage of Bleeding Disorder Treatments EXPERTS: Aaron Blocker1, Nathan Schaefer1, Miriam Goldstein2, Kollet Koulianos1 Amy Dunn 3,4 1 National…
Federal:Medicaid Work Reporting RequirementsOn June 1, the Centers for Medicare and Medicaid Services (CMS) released guidance for states on how to implement the community engagement requirements (also known as work…
Speakers: Mary Lesh, CPNP-PC, MSN, RN; Rae Kerlin, BS, MLS, NCA; Julia Hews-Girard, PhD, RN; Amy K. Wilson, LICSW, Ray StanhopeThe multidisciplinary care model is the heart of bleeding disorders treatment and care. Join us for an evidence-based…
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Bleeding.org Conversations is a podcast from the National Bleeding Disorders Foundation that explores the issues that matter most to people living with hemophilia, von Willebrand disease, and other rare bleeding disorders. Hosted by actor and…
September 4-6, 2026Hilton Anaheim777 W Convention Way, Anaheim, CAJoin us for a one-of-a-kind national conference designed for Spanish-speaking individuals and families affected by bleeding disorders. Educational sessions for all agesCommunity…
The Community Voices in Research registry is powered by the community and collects information about what it is like to live with a bleeding disorder from the people who know these conditions best: those with lived experience. This study describes a…