Helping Shape What's Next for the Bleeding Disorders Community
 The National Bleeding Disorders Foundation's (NBDF) impact can be seen across the bleeding disorders community through advocacy, education, research, and programs that support individuals and families with hemophilia, von Willebrand disease,…
Effect of Exercise on Bone Mineral Density and Strength in Factor VIII Deficient Mice
The study will characterize the skeletal health of factor VIII deficient mice with and without exercise and compare these two groups to each other and to historic results from wild-type mice. We hypothesize that exercise will improve the skeletal…
Replacing What’s Missing: The Role of COAGADEX in the Management of Hereditary Factor X Deficiency (HFXD)
Speaker: Meera Chitler, MD This program will focus on an ultra-rare bleeding disorder, hereditary factor X deficiency (HFXD). Attendees will learn more about this severe bleeding disorder, including symptoms, testing, and unique severity scale…
North American Nursing Research in Bleeding Disorders- Self Compassion In Women and Girls with Bleeding Disorders Project
Self-compassion, which means being kind and understanding toward yourself during difficult times, has been shown to support mental health and wellbeing in several health conditions. This project supports research in understanding how women and girls…
The Impact of Adverse Childhood Experiences on Health Outcomes in Adulthood in Patients with Bleeding Disorders
Stressful things that happen to us as children can increase the risk of health problems when we become adults. There are no studies about what that means for people who have bleeding disorders. We want to find out whether having more stressful…
Diagnostic Ultrasound Versus Weight-bearing CT for Detection of Joint Degeneration in Athletes With Hemophilia on and off Prophylaxis
Even with modern treatments, athletes with hemophilia can still develop joint damage that routine clinic exams may not fully detect. This study will test whether two imaging methods, standing CT scans and ultrasound, can better show early joint…
Mark Skinner Receives NBDF Lifetime Achievement Award for Four Decades of Leadership in the Bleeding Disorders Community
Mark Skinner, JD was honored with one of the National Bleeding Disorder Foundation’s (NBDF) highest accolades, the Lifetime Achievement Award, at its Bleeding Disorders Conference, held in Orlando, Florida on August 13-15th, 2026.A Lifetime…
NBDF Mourns the Passing of Physician-Researcher Deeksha Katoch, MBBS, MHS
The National Bleeding Disorders Foundation (NBDF) was saddened to learn of the death of Dr. Deeksha Katoch, MBBS, MHS, a clinician-investigator at the Yale School of Medicine. She was selected as a NBDF-Takeda Clinical Fellow in 2025.Dr. Katoch…
Shining Stars: Celebrating the 2026 Awards of Excellence Recipients
Each year, NBDF honors the incredible individuals who make a difference in the bleeding disorders community. From the advocates who tirelessly push for better access to care, to the providers who go above and beyond for their patients, to the…
Research & The Diagnosis Journey
Bleeding.org ConversationsEach month, we’re sitting down with the experts in our community for some real talk. Hosted by actor and advocate Greg Grunberg, Bleeding.org Conversations features discussions with lived experience experts…