Research Priorities
The BDRC Structure and Research Prioritie

Learn more about how the collaborative is currently organized and how research priorities will help to identify important projects and achieve our goals.

Lived Experience Experts (LEEs) Leading the Way

People affected by bleeding disorders, known as lived experience experts (LEEs), are critical to every step of the research process and are right at the very center of the principles and structure of the BDRC.

Lived experience experts (LEEs) leading the way
How to Get Involved

Activating this BDRC will only be possible with the help of the entire community. Understand the many ways to get involved!

How to Get Involved
Our Journey Together
Our Journey Together
A document titled "Launching a Community-Driven National Research Blueprint  for Inheritable Bleeding Disorders 2024"
NRB At-a-Glance

Review this snapshot of the NRB purpose, the journey we’ve taken together as a community to reach this point, and where we go from here.

BDRC Resources

Check regularly for FAQs, reference materials, and resources on the progress of the BDRC.

BDRC Resources