Blood disorders are serious chronic health conditions with immense individual, societal, health, and economic costs that can vary significantly for each individual.  Advocacy, education and research are the cornerstones of NHF’s core programming and support services.  Along with our chapter services and medical information departments, these programs have been designed to meet the specific needs of this unique population.

Advocacy Initiatives
Advocacy Initiatives

Together, we fight for access to healthcare for the bleeding disorders community.

The ACT Initiative

Our ACT initiative focuses our efforts on building strong local chapters, and ensuring access to treatments and care.

 The ACT Initiative
Educational Programs
Community Education

Our programs empower our community to live healthy lives.


A world without bleeding disorders begins with research.

Request Information

Do you need information about bleeding disorders? Contact HANDI, NHF's information resource center. A highly knowledgeable and dedicated HANDI staff member will respond promptly. We can assist with questions about:

  • Hemophilia
  • Von Willebrand disease
  • Women with bleeding disorders
  • Rare factor deficiencies
  • Available treatments
  • Scholarships
  • School issues
  • Financial assistance
  • Gene therapy

Pioneer Partner



Champion Partner

Sanofi Genzyme


Crusader Partners

BioMarin Grifols Hemophilia Alliance