Language, Literacy, and Leading the Way Serves as the foundational anchor session for the summit. It frames the core objectives of the event, outlining how health literacy serves as a gateway to equity and setting a strategic vision…
Community voices offer critical insight into how language and literacy shape real experiences with care, research, and systems. This panel brings together chapter directors, healthcare providers, and individuals living with a bleeding disorder who…
How we communicate is a critical part of how care is delivered. This session explores intentional communication as a tool for building trust, reducing harm, and honoring patient dignity. Participants will examine how mindful, empathetic…
Group Report Outs, Call to Action & Adjournment The concluding segment of the summit, bringing together the key takeaways, collaborative group findings, and actionable next steps for advocates and providers to lead the way in…
Clear Words, Better Care: Health Literacy and Bleeding Disorders Focuses on the practical intersection of health literacy and patient outcomes within the bleeding disorders community. The session breaks down how simplified, patient-…
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Speakers: Ryan Crowe, Sulmari Powell-Barreto, Stephanie Dupree, Kate NammacherNavigating life with a bleeding disorder often isn't easy, but with the latest information, education, and support, you can feel empowered. NBDF's…
Federal:FED UP with Bleeding Disorders Act Introduced in House On May 22, Representatives Julie Johnson (D-TX-32), Joe Wilson (R-SC-02), and Sarah McBride (D-DE-At Large) introduced the Fostering Effective…
On June 1st, 2026, the federal Centers for Medicare and Medicaid Services (CMS) released its long-awaited rule providing guidance to state Medicaid programs on how to implement the Medicaid work reporting requirements and eligibility limits enacted…
Join us for the Inaugural Charity Poker Tournament benefiting the Nevada Chapter of the National Bleeding Disorders Foundation100% of funds raised stay in Nevada to support local families living with a bleeding disorder.This is a fun evening you won…