For teens with bleeding disorders, part of growing up means taking on more responsibility for their treatment and care. That can mean understanding their health insurance, ordering their medication, managing work and school accommodations, and being more involved in community events.
What Resources Does NBDF Have for Teens and Young Adults?
NBDF’s Steps for Living has a wealth of information for teens and young adults who are taking steps towards independence. You can explore information on:
Connect with Your Community
Many teens become less involved with their chapter as they take on the responsibilities of higher education, work, and other pressures of adulthood. However, your local NBDF chapter still can provide important support, community, and resources as you manage this transitional period. For more information on what chapters can provide you, visit the Educate to Elevate Chapters & HTCs page, or find a chapter near you at our chapter directory.
NBDF's National Youth Leadership Institute (NYLI) provides young people (19-24 years old) in the bleeding disorders community with leadership opportunities to encourage personal growth, effect change, and positively influence others. NYLI alumni have gone on to become chapter leaders, doctors, researchers, government aides, and community advocates. You can learn more about this program by visiting the NYLI webpage.
How NBDF Can Help You
It is one of NBDF's goals to make sure all people with bleeding disorders can connect with resources and support so they can lead full and healthy lives. We provide:
- A local chapter network to connect with others who understand
- Educational resources for every stage of life
- The Neil Frick Resource Center for specific questions
- Webinars, conferences, advocacy programs, and research initiatives
Join our mailing list to stay up to date on what NBDF can offer you and your family.
Make a Difference
Your support helps NBDF create programs and resources about mental health and wellness for people with bleeding disorders, including the Neil Frick Resource Center, Steps for Living, and in-person educational workshops through NBDF’s Education for Empowerment program.