The National Bleeding Disorders Foundation wants to make sure that every person with a bleeding disorder can find education and support. That’s why NBDF supports a nationwide chapter network. These chapters are local bleeding disorders organizations – most of them independent nonprofits – that provide education and support for people and families living with bleeding disorders. They are a place where you can meet other people who understand what it is like to live with a bleeding disorder.
How to Find a Local Chapter
Go to NBDF’s chapter directory and use the interactive map to find the chapter closest to you. The directory will tell you the name, location, and link to the organization’s website, where you can learn more about the programs and events that the chapter offers.
Each chapter is different, but most offer educational programs around treatment options, support groups or social groups for specific needs (for example, a men’s group, a group for women with bleeding disorders, etc.) Many chapters also have camps for kids with bleeding disorders or families. Chapters also have informal gatherings, and many hold Unite for Bleeding Disorders Walks to raise funds for their programs.
Bleeding disorders camps are usually in two categories: kids camps and family camps. Many chapters in NBDF’s chapter network offer these programs. Camps for kids are typically a week long, and bring together kids with all different bleeding disorders together for a week of safe physical activities, education and skill-building, and just plain fun. The connections that kids make at camp often last for a lifetime. Reach out to your local chapter to learn more.
Family camps are similar but are for the whole family. Usually held over a weekend, family camps offer activities for kids as well as adults and give families a chance to connect with others who have similar experiences. Not all chapters offer family camps, so contact your local chapter directly to learn more.
It is free to join a chapter that is a member of NBDF’s chapter network. However, some events, such as camps and other gatherings, may have fees associated with them.
No. Hemophilia treatment centers, or HTCs, are places where people can go to get specialized care to treat their bleeding disorder and are staffed by medical professionals. Despite the name, HTCs also treat people with von Willebrand disease, platelet disorders, and ultra rare bleeding disorders. Some HTCs are also chapters and provide the same education and events as a chapter. Many HTC staff volunteer with their local chapter, conduct outreach through the chapter, work as staff at bleeding disorders camps, and do other coordinated activities.
Getting involved with your local chapter can help you feel less alone and more connected with people who truly understand life with a bleeding disorder. Chapters bring the community together to learn, share experiences, and most importantly, support one another. By supporting the chapter network, the National Bleeding Disorders Foundation helps these connections thrive, strengthens local communities, and ensures that no one as to navigate living with a bleeding disorder alone.
Make a Difference
Your support helps us connect more individuals and families to local bleeding disorders chapters, strengthen access to education and support, and ensure people can find a community that understands and helps them get the care they deserve.