Big changes are coming to Medicaid in January, and you should be ready. Join a panel of public policy experts from the National Bleeding Disorders Foundation and the Artemis Policy Group to learn about the changes coming as a result of HR 1 (One Big…
Federal:Wednesday Webinar on Medicaid Work RequirementsBeginning January 1, 2027, State Medicaid programs must implement “community engagement requirements” (also known as “work reporting requirements) as a…
The National Research Blueprint is a proposal for a new Bleeding Disorders Research Collaborative (BDRC) doing the research people with bleeding disorders need and want. The people who live with a disorder, and their close family members affected by…
The National Research Blueprint (NRB) was a U.S. National Bleeding Disorders Foundation (NBDF) initiative to better understand all facets impacting research and to set the foundation for what and how inheritable bleeding disorders research should be…
Over the past several years, bleeding disorders advocates and other community leaders have worked together to create the National Research Blueprint for a new U.S. Bleeding Disorders Research Collaborative. Its goal is for research to be more…
Previous work led by the U.S. National Bleeding Disorders Foundation (NBDF) concluded that Lived Experience Experts (LEEs), people, who live with inheritable bleeding disorders and their impacted caregivers and family members, develop unique…
#bdbody {
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}Caregiving is stressful. Caregiving for families with bleeding disorders can come with added responsibilities – managing treatment, advocating, and all the extra daily tasks that add to…
The National Bleeding Disorders Foundation (NBDF) has announced its 2026 Excellence Fellowship recipients, recognizing outstanding healthcare professionals whose research aims to improve care and outcomes for people living with bleeding disorders.…
The National Bleeding Disorders Foundation (NBDF) has been nominated for the Inaugural Prix Galien Patient First Award in Honor of Michael J. Fox by The Galien Foundation, a global institution recognizing groundbreaking achievements in the life…