Caregiving is stressful. Caregiving for families with bleeding disorders can come with added responsibilities – managing treatment, advocating, and all the extra daily tasks that add to the mental workload. The National Bleeding Disorders Foundation (NBDF) has resources and support for caregivers to help them navigate family life with a bleeding disorder.
What Resources Does NBDF Have for Caregivers of Children with Bleeding Disorders?
NBDF’s Steps for Living has comprehensive information for families with bleeding disorders and resources for parents of young children, teens, and young adults. You can explore information on:
Mental Health Resources for Caregivers of People with Bleeding Disorders
The obligations of caregiving can add stress, anxiety and other mental stresses to your daily life. NBDF has resources to help you cope with these stresses.
Find Your People
Your local NBDF chapter is there to help you and your family. Chapters offer support groups, family camps, and other ways to connect with people who understand what you’re going through. You are not alone.
How NBDF Can Help You
It is one of NBDF's goals to make sure all people with bleeding disorders can connect with resources and support so they can lead full and healthy lives. We provide:
- A local chapter network to connect with others who understand
- Educational resources for every stage of life
- The Neil Frick Resource Center for specific questions
- Webinars, conferences, advocacy programs, and research initiatives
Join our mailing list to stay up to date on what NBDF can offer you and your family.
Make a Difference
Your support helps NBDF create programs and resources for caregivers and families with bleeding disorders, including the Neil Frick Resource Center, Steps for Living, and in-person educational workshops through NBDF’s Education for Empowerment program.