The Community Voices in Research registry is powered by the community and collects information about what it is like to live with a bleeding disorder from the people who know these conditions best: those with lived experience. This study describes a sample of female participants based on their diagnosis, race, ethnicity, income, age, employment, and education. Most participants identify as non-Hispanic and White. About half of the sample has a diagnosis of von Willebrand disease (VWD) or hemophilia A. The average age of participants is approximately 44 years. Most work full time, and the most commonly reported level of education is a high school diploma or equivalent. After adjusting for household size, the median annual income is about $23,000, with incomes ranging from $314 to $190,000. Researchers are continuing to study this sample to better understand how these demographic and socioeconomic factors relate to reproductive bleeding experiences among females. AI was used for this summary.
Awarded/Presented
Tags
N/A
CVR
Researchers
Paxton Mills; Cynthia Nichols; Maria E. Santaella