Skip to main content
 
Paid Advertisement.
 NBDF does not endorse products or manufacturers.
Leaderboard Ad

Top area menu

  • News
  • Events
Home
menu burger
  • Give
  • Subscribe

Main navigation

  • Who We Are
  • Bleeding Disorders A-Z
  • Educational Programs
  • Advocacy
  • Research
  • Healthcare Professionals
  • Community Resources
  • Make a Difference
  • Our Story
  • Mission & History
  • What We Do
  • What Do We Value?
  • Health Access
  • NBDF Reports
  • Financial Statements
  • Media Newsroom
  • Educate to Elevate
  • The National Hemophilia Foundation Has a New Name
  • The Red Thread: 75th Anniversary Celebration
  • Our Team
  • Staff
  • Board of Directors
  • MASAC
  • Meet the NYLI
  • Nursing Working Group
  • Physical Therapy Working Group
  • Social Work Working Group
  • LEE Research Advisory Council
  • Our Partners
  • Partners In Progress
  • The ACT Initiative
  • Red Tie Society
  • CDC Coop Agreement
  • Pathway to Cures
  • Careers
  • What Do We Value?
  • Career Opportunities
  • Volunteer Opportunities
  • Overview
  • Fast Facts
  • What is a Bleeding Disorder?
  • History
  • Types of Bleeds
  • Inhibitors
  • Women and Bleeding Disorders
  • Types
  • Hemophilia A
  • Hemophilia B
  • Von Willebrand Disease
  • Other Factor Deficiencies
  • Inherited Platelet Disorders
  • Treatment
  • Comprehensive Medical Care
  • MASAC For You
  • Treatment Guidelines (MASAC)
  • Current Treatments
  • Innovative Therapies
  • Clinical Trials
  • Shared Decision-Making
  • Hemophilia Treatment Centers
  • Healthcare Coverage
  • Choosing an Insurance Plan
  • Private Insurance
  • Public Insurance
  • Health Insurance Toolkit
  • Education
  • Bleeding Disorders Conference
  • Inhibitor Education
  • Steps for Living
  • Online Education
  • Rare Bleeding Disorders
  • Von Willebrand Disease
  • Mental Health
  • Gene and Innovative Therapies
  • Women
  • Educational Programming
  • Clotting Cascade
  • Training
  • Youth Leadership (NYLI)
  • Outreach
  • THRIVE
  • THRIVE - en español
  • Undiagnosed
  • Guías Culturales
  • Federal Priorities
  • Access to Care
  • Federal Programs
  • Medicare
  • Medicaid
  • Blood & Blood Product Safety
  • Make All Copays Count
  • State Priorities
  • Utilization Management
  • Patient Out-of-Pocket Expenses
  • Medicaid
  • How You Can Take Action
  • Voices for Policy Change!
  • Washington Days
  • Advocacy Do’s and Don’ts
  • 6 Steps for Grassroots Advocacy
  • Tell Your Story
  • Managed Care & Payers
  • Collaborating on Coverage
  • Quality of Care Guidelines
  • CME/CE Webcast Series
  • Educational Web Portal
  • Quality Improvement & Cost Management
  • Research Projects
  • Foundation Research
  • Funded by Foundation
  • Presented at Our Conference
  • Research Journal Club
  • Research Roundtable
  • Clinical Trial Essentials
  • coreHem Mental Health Tool
  • Fund Your Research
  • Judith Graham Pool Postdoctoral Research Fellowship
  • NBDF-Sanofi Career Development Award
  • Nursing Excellence Fellowship
  • Physical Therapy Excellence Fellowship
  • Social Work Excellence Fellowship
  • Community Voices in Research
  • What is CVR?
  • How & Why Should I Participate?
  • Impact on Research
  • Frequently Asked Questions
  • Login to CVR
  • Bleeding Disorders Research Collaborative
  • What is the Bleeding Disorders Research Collaborative?
  • The BDRC Structure and Research Priorities
  • Lived Experience Experts (LEEs) Leading the Way
  • How to Get Involved
  • Our Journey Together
  • BDRC Resources
  • Guidelines on Care
  • Comprehensive Care
  • MASAC Documents
  • MASAC Minutes
  • Products Licensed (US)
  • Emergency Management
  • Snapshots of VWD Guidelines
  • Education & Resources
  • NBDF-Takeda Clinical Fellowship Program
  • NBDF’s Collaborative Learning Exchange
  • Online Education for Providers
  • Live & Online Learning (Partners)
  • Rare Coagulation Disorders Resource Room
  • Peer-reviewed Journals
  • NBDF Publications
  • Other Associations
  • Allied Healthcare
  • Nursing
  • Physical Therapy
  • Social Work
  • Other Interdisciplinary Healthcare Providers
  • Request Information
  • Contact Us
  • The Neil Frick Resource Center
  • Read Our Publications
  • Subscribe for Email Updates
  • Get HemAware Magazine
  • Newsletter Archive
  • Wednesday Webinar Series
  • Resources Near You
  • Chapters
  • Hemophilia Treatment Centers
  • Clinical Trials
  • Bleeding Disorders Camps
  • Community Voices in Research
  • Financial Assistance
  • Scholarships
  • Patient Assistance Programs
  • Donate
  • Donate Now
  • Donor Advised Funds
  • Donate Securities or Cryptocurrency
  • Give Monthly
  • Planned Giving
  • Join Us
  • Become a Corporate Partner
  • Bleeding Disorders Awareness Month
  • Find a Walk
  • Participate in Research/CVR
  • Why Give?
  • More than a Donation
  • Create Your Own Fundraiser
  • Fundraise on Social Media
  • Run in a Marathon
  • Matching Gifts
Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Disorders Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
      • Planned Giving
    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
  • Give
  • Subscribe
NBDF’s Established Initiatives & Impact >

Search

  1. Home
  2. Search
Factor II
Factor II (Prothrombin) Deficiency Factor II (FII) deficiency, also called prothrombin deficiency, was first identified in 1947 by Dr. Armand Quick. The incidence is estimated at 1 in 2 million in the general population.  Factor II…
Factor V
Factor V (Labile Factor, Proaccelerin) Deficiency (Owren’s Disease, Parahemophilia)Factor V (FV) deficiency was first described in a Norwegian patient in 1943 and reported by Dr. Paul Owren in 1947. Its incidence is about 1 in 1 million; fewer…
Factor VII
Factor VII (Labile Factor or Proconvertin) Deficiency (Alexander’s Disease) Factor VII (FVII), or proconvertin, deficiency was first recognized in 1951. Considered the most common of rare bleeding disorders its incidence is estimated at 1…
Factor X
FACTOR X (Stuart-Prower Factor) DEFICIENCY Factor X (FX), or Stuart-Prower factor, deficiency was first identified in the 1950s in the US and England in two patients: Rufus Stuart and Audrey Prower. The incidence of FX deficiency is estimated at…
Factor XI
FACTOR XI DEFICIENCY (Hemophilia C, Plasma Thromboplastin Antecedent (PTA) Deficiency, Rosenthal Syndrome)Factor XI (FXI) deficiency, also called hemophilia C, plasma thromboplastin antecedent deficiency and Rosenthal syndrome, was first recognized…
Factor XII
FACTOR XII (Hageman Factor) DEFICIENCY Factor XII (FXII) deficiency, also called Hageman factor deficiency, was first identified in 1955 in John Hageman. Its incidence is estimated at 1 in a million. FXII deficiency is inherited in an autosomal…
Factor XIII
FACTOR XIII (Fibrin Stabilizing Factor) DEFICIENCY Factor XIII (FXIII), or fibrin stabilizing factor, deficiency was first reported in the literature in 1960. It is the rarest factor deficiency, occurring in 1 per 5 million births…
Current Treatments
Treatment Options for Bleeding DisordersThere are many different types of therapies to treat bleeding disorders, and new ones are in development. Each person may respond to a treatment in their own way, so it is important to work closely with your…
Innovative Therapies
Innovative Therapies for Bleeding DisordersOver the last few years, new, innovative therapies have been approved to treat bleeding disorders. These treatments are sometimes referred to as “novel” therapies, because they work differently in the body…
Future Therapies Glossary
 Gene Therapy Glossary of TermsA | B | C | D | E | F | G | H | I…

Pagination

  • First page
  • Previous page
  • …
  • Page 277
  • Page 278
  • Page 279
  • Page 280
  • Current page 281
  • Page 282
  • Page 283
  • Page 284
  • Page 285
  • …
  • Next page
  • Last page

Contact us

1230 Avenue of the Americas 16th Floor, New York, NY 10020, United States
212.328.3700
212.328.3777

About

  • What We Do
  • Our Team
  • Careers
  • Request Information

Resources

  • Chapters
  • HTC Search
  • Clinical Trials
  • Scholarships
  • Camp Near You
  • CVR

Legal

  • Privacy Policy
  • Medical Disclaimer
  • Gift Acceptance
  • Conflict of Interest
  • Whistleblower
  • Translation Policy

Give

  • Donate
  • Fundraise
  • Other Ways to Give
  • Why Give?

NBDF White

Candid Seal Platinum Charity Navigator

©  National Bleeding Disorders Foundation
All rights reserved.