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Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners)
      • Rare Coagulation Disorders Resource Room
      • Peer-reviewed Journals
      • NBDF Publications
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
      • Planned Giving
    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
  • Give
  • Subscribe
NBDF’s Established Initiatives & Impact >

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Women
Women with Bleeding DisordersNBDF is committed to improving the health outcomes for WGPPM with bleeding disorders. Our WGPPM initiatives goals are:to increase awareness of WPGGM’s bleeding disorders so that they receive early, accurate diagnoses,…
Educational Programming
Education for Empowerment Chapter Request Process and GuidelinesEducation for Empowerment (EE) 2026 will officially launch on January 12th! What Are We Offering?Educational SessionsWe have created a list of “Hot Topic”…
Youth Leadership (NYLI)
The application for the 2025 NYLI cohort is currently closed. If you're interested in applying in the future, please check back periodically for updates on future cohort opportunities. What is NYLI?NBDF's National Youth Leadership Institute (…
Undiagnosed
Better You Know (BYK) is a bilingual campaign developed by the National Bleeding Disorders Foundation (NBDF) in partnership with the Centers for Disease Control and Prevention (CDC) through a cooperative agreement. The campaign is focused on women…
Guías Culturales
The Guías Culturales (translation: cultural guides) are trained Spanish-speaking volunteers who provide a variety of services to the Latinx bleeding disorders community.  The Guías implement educational for empowerment workshops throughout the…
Join the NYLI
The application for the 2025 NYLI cohort is currently closed. If you're interested in applying in the future, please check back periodically for updates on future cohort opportunities. Eligibility Requirements:Be a high school graduate or…
Join the Nursing Working Group
  NATIONAL BLEEDING DISORDERS FOUNDATION NURSING WORKING GROUP BYLAWS The Nursing Working Group (NWG) is a professional working group under the organizational auspice of the Medical and Scientific Advisory Council (MASAC) of the…
Join the Physical Therapy Working Group
Statement of Purpose The Physical Therapy Working Group (PTWG) was formally established in October of 1987 to support the mission of the National Bleeding Disorders Foundation (NBDF) and to serve as mentors and resources to physical therapists…
Join the Social Work Working Group
Qualifications A minimum of twelve months’ prior experience working in a Social Work capacity with an HTC or a NBDF chapter. Members of the SWWG are also required to: have a Bachelor’s Degree in Social Work (Master’s Degree preferred); have…
Bleeding Disorders A-Z
Bleeding disorders result when the blood’s ability to form a clot at the site of blood vessel injury is impaired. Here you will find information on inherited bleeding disorders, such as hemophilia, von Willebrand disease and rare factor deficiencies.

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