Whether you or someone in your family has been recently diagnosed with hemophilia, or you've lived with hemophilia your entire life and want a refresher on the fundamentals, this session is for you. We will explain what hemophilia is, how it's…
NHF’s Medical and Scientific Advisory Council (MASAC) recently approved new treatment guidelines for providers who administer opioids to treat pain in people with bleeding disorders. Come learn about the new guidelines from expert providers and…
Join NHF’s private community for Black/African Americans with bleeding disorders on HealthUnlocked. HealthUnlocked is a health and wellness-based social media platform which provides a private space for members to share their experiences,…
This session will review the signs and symptoms of von Willebrand disease, discuss genetics and inheritance patterns, and define and compare the three types of VWD. The presentation will also cover laboratory diagnosis and its challenges, and the…
To the members of the inheritable blood disorders community,
Let me begin with a word for the thousands of members of our community – patients, providers, partners, family, and friends – who are also members of the Asian and Pacific Islander…
La Fundación Nacional de Hemofilia de los Estados Unidos de Norte América – NHF (por sus siglas en inglés) se complace en contar con su valiosa colaboración en la primera parte de la Serie Virtual Viviendo con Inhibidores que se…
Background:
Recombinant adeno-associated viruses (rAAV) are replication-deficient, non-integrating viruses commonly used as vectors for gene therapies currently in clinical development. Systemic administration of gene therapy…
Join us for the latest updates and get expert answers to your questions about how COVID-19 affects our community of people with bleeding disorders, healthcare providers, manufacturers, and others.
Si trata con factor de coagulación, puede estar en riesgo de desarrollar un inhibidor. Este taller es para personas que no tienen un inhibidor pero desean aprender más sobre el riesgo. Explicaremos los conceptos básicos de los inhibidores, cómo se…
En esta sesión abordaremos sus derechos como inmigrante, asi como los retos que afronta cada grupo familiar con el tema de inmigracion; incluyendo a los niños que están indocumentados o tienen padres indocumentados que temen deportación y no saben…