Objective:
Von Willebrand disease (VWD) is the most common inherited bleeding disorder, however, initial diagnosis and subsequent management of patients after diagnosis remains a challenge. The aim of this study was to…
The National Hemophilia Foundation (NHF) announced that Keri L. Norris, PhD, MPH, MCHES, has joined NHF as vice president of health equity, diversity, and inclusion. Dr. Norris has more than 20 years of experience in health equity, public…
As part of a patient education webinar series known as ITP INSIGHTSSM, the Platelet Disorder Support Association (PDSA) recently recorded a session on the new COVID-19 vaccines and immune thrombocytopenic purpura (ITP), a disorder characterized by…
In Genentech’s ongoing efforts to transparently communicate with the hemophilia community, we are sharing two updates to the Hemlibra label that were requested by the FDA. These changes, which were accepted and implemented on March 10, 2021, impact…
Whether you or someone in your family has been recently diagnosed with hemophilia, or you've lived with hemophilia your entire life and want a refresher on the fundamentals, this session is for you. We will explain what hemophilia is, how it's…
NHF’s Medical and Scientific Advisory Council (MASAC) recently approved new treatment guidelines for providers who administer opioids to treat pain in people with bleeding disorders. Come learn about the new guidelines from expert providers and…
Join NHF’s private community for Black/African Americans with bleeding disorders on HealthUnlocked. HealthUnlocked is a health and wellness-based social media platform which provides a private space for members to share their experiences,…
This session will review the signs and symptoms of von Willebrand disease, discuss genetics and inheritance patterns, and define and compare the three types of VWD. The presentation will also cover laboratory diagnosis and its challenges, and the…
To the members of the inheritable blood disorders community,
Let me begin with a word for the thousands of members of our community – patients, providers, partners, family, and friends – who are also members of the Asian and Pacific Islander…
La Fundación Nacional de Hemofilia de los Estados Unidos de Norte América – NHF (por sus siglas en inglés) se complace en contar con su valiosa colaboración en la primera parte de la Serie Virtual Viviendo con Inhibidores que se…