Background:
Many hemophilia treatment centers (HTCs) have a comprehensive care clinic in which a variety of providers see patients with bleeding disorders. Registered dental hygienists (RDHs) are, in some cases, a part of the…
Get cozy on the couch to listen to NHF’s new children’s book for kids with rare bleeding disorders, Super Seven! You’ll meet Tanner, a basketball-obsessed kid who has big dreams, a big game ahead of him – and a rambunctious little sister. We’ll play…
Every March, we come together to share our stories and spread awareness, making our voices heard all across the country! Follow us on social to learn more about Bleeding Disorders Awareness Month. About Bleeding Disorders Awareness…
Did you miss our Wednesday Webinar on February 24th? If so you can review the recording here.
Vicar Sayeedi of Synthetic Intelligence, LLC discusses what AI is, how it can be used in life sciences, and its outlook for the future.…
Come the Spring of 2021 patients and caregivers will be presented with a new opportunity to provide valuable feedback on the care they receive at hemophilia treatment centers (HTC) across the United States.
The Third National Patient Satisfaction…
We invite you to join the quarterly board of directors meeting for the National Hemophilia Foundation on March 4th starting at 7:00 pm ET. This meeting will discuss NHF business operations and decisions and is…
This session will present findings from a national needs assessment conducted by NBDF in partnership with the CDC about the experiences and needs of people with bleeding disorders within African American communities. The group will discuss…
Factor XIII deficiency is classified under rare bleeding disorders and is in fact, the rarest with an incidence of 1 in 2 to 3 million births and is inherited in an autosomal recessive manner. On the other hand, Von Willebrand Disease (VWD) is the…
This session will commemorate and reflect on the landmark legislation on HIV/AIDS care with a renewed call to action for the bleeding disorders community to be vigilant and engaged healthcare policy advocates.
These are exciting times in hemophilia research, with many new treatment options on the horizon. Come learn about the latest results of various phases of clinical trials on gene therapy and other new treatment options to see what the future holds…