In this session, we will evaluate bleed presentation in children with bleeding disorders at 3 to 5 years of age, discuss educational tools and safety guidelines for caregivers, and analyze developmentally appropriate activities for children with…
The Children’s National Hospital and Takeda recently announced the creation of a new, first-of-its-kind program to help standardize and streamline the process of diagnosis and care for individuals with rare diseases. Historically, rare disease…
The National Hemophilia Foundation (NHF) is refocusing its mission statement to reflect a renewed emphasis on research and an expanded scope to include inheritable blood disorders.
The newly adopted mission statement reads:
The mission of the…
The National Hemophilia Foundation is now accepting nominations for its Awards of Excellence. These awards honor members of the bleeding disorders community who have made outstanding contributions to improving the lives of people with bleeding…
The Medical and Scientific Advisory Council (MASAC) of the National Hemophilia Foundation (NHF) issued three new documents, all of which were adopted by NHF’s Board of Directors on March 4, 2021.MASAC Document #264, which replaces…
The National Hemophilia Foundation (NHF) announced plans for a NHF State of the Science Research Summit to bring together the inherited bleeding disorders community for a virtual conference to identify and accelerate research progress in the areas…
Objective:
Von Willebrand disease (VWD) is the most common inherited bleeding disorder, however, initial diagnosis and subsequent management of patients after diagnosis remains a challenge. The aim of this study was to…
The National Hemophilia Foundation (NHF) announced that Keri L. Norris, PhD, MPH, MCHES, has joined NHF as vice president of health equity, diversity, and inclusion. Dr. Norris has more than 20 years of experience in health equity, public…
As part of a patient education webinar series known as ITP INSIGHTSSM, the Platelet Disorder Support Association (PDSA) recently recorded a session on the new COVID-19 vaccines and immune thrombocytopenic purpura (ITP), a disorder characterized by…
In Genentech’s ongoing efforts to transparently communicate with the hemophilia community, we are sharing two updates to the Hemlibra label that were requested by the FDA. These changes, which were accepted and implemented on March 10, 2021, impact…