Faith can provide many things to a person: comfort, love, and a community of support. But sometimes living with the realities of a chronic illness can result in a struggle between one’s beliefs and one’s day-to-day situation. In this session, we’ll…
As a parent or primary caregiver of a child with a bleeding disorder, it's easy to put all of your focus into managing your child's care. Especially during this time, it is important to nurture your relationship with your partner - and to make your…
Muchas familias y culturas tienen sus propios remedios caseros "especializados" para tratamientos y curas. Esta sesión explorará cuántos de estos remedios caseros a veces pueden causar daño y entrar en conflicto con el tratamiento. Many families and…
What does it mean to be a future leader of the Bleeding Disorders Community? Is it possible to make a difference at my chapter while I'm still a teen? If you're looking to get involved these questions are probably on your mind. Come meet members of…
Throughout the different stages of living with a bleeding disorder, we can be or become immobile at one point or another. During this session, you will learn movement and meditation techniques that alleviate stress and anxiety that come along with a…
Durante COVID-19 muchos niños están ahora averiguando cómo aprender en línea a través de la escuela virtual. Muchos padres y cuidadores ahora tienen la tarea de trabajar, la escuela en línea y el cuidado de niños. En esta sesión se discutirán…
During COVID-19, many children are now figuring out how to learn online through virtual schooling. Many parents and caregivers are now tasked with balancing work, online school, and child care. This session will discuss strategies, tips, and stories…
2020 is the year that VWD guidelines will be announced. This will be an opportunity to learn, explore, and understand the new measures for treatment, diagnosis, and protocols.
The von Willebrand disease (VWD) pre-conference brings together the VWD community to connect in a lively, engaging and supportive educational environment. This year, we will focus on the elements of reconnecting, rebuilding and refocusing as a…