This session will examine the intersection between Western Asian/Muslim culture and life with a bleeding disorder. We will discuss challenges and successes confronting generational issues, acceptance, and cultural nuances. The session will close…
If you treat with clotting factor, you may be at risk of developing an inhibitor. This workshop is for people who do not have an inhibitor but want to learn more about risk. We will explain the basics of inhibitors, how they develop, and how and why…
Women and girls with bleeding disorders often deal with particular issues and taboos related to diagnosis, symptoms, access to care. In this session, an expert who works to improve the quality of life for women and girls with bleeding disorders will…
This session will examine the intersection between Asian and Pacific Islander (API) culture and life with a bleeding disorder. We will discuss successes, challenges, and cultural nuances. The session will close with a group discussion on how to…
During this session, you will gain a deeper understanding of post-traumatic stress disorder (PTSD) and how it can manifest for a person with a bleeding disorder or a family member. We will discuss how PTSD can affect your personal and professional…
Pregnancy and childbirth for women with bleeding disorders take extra planning and care. Come learn from an expert and community member about issues women with bleeding disorders face when pregnant and giving birth, and how to advocate for the care…
uniQure recently announced the results of a comprehensive investigation into a case of hepatocellular carcinoma (HCC) diagnosed in one patient participating in the phase III HOPE-B pivotal trial of etranacogene dezaparvovec, the company’s…
The American Rescue Plan (ARP), signed into law on March 11, 2021, provides new opportunities to get health insurance coverage, and/or to reduce the cost of your premiums. Review your coverage now to make sure you are maximizing your benefits under…
NHF's Wednesday Webinars for April 2021 will feature an array of speakers and topics of interest to both healthcare providers and patients and families with blood disorders alike.
April Webinars
All webinars are from 2:00pm-3:00pm ET.…