Samantha Carlson is the director of research at the National Bleeding Disorders Foundation, where she engages and supports diverse individuals and groups in ways that are meaningful, inclusive, and accessible, with the goal of making research…
Kevin Mills, PhD has joined the National Hemophilia Foundation as chief scientific officer.
A graduate of University of Colorado Boulder, MIT, and Harvard Medical School, Dr. Mills will be responsible for overseeing NHF’s research strategy,…
uniQure recently announced that the U.S. Food and Drug Administration (FDA) has removed a clinical hold on their hemophilia B gene therapy program. The FDA had determined that uniQure satisfactorily addressed all issues raised by the agency that…
NHF's Wednesday Webinars for May 2021 will focus on Women's Health Month, featuring topics of interest to both patients and healthcare providers who are interested in issues faced by women with inheritable blood disorders.
May…
Objective:
Inhibitor development is the most serious complication of hemophilia A therapy. Immune tolerance induction (ITI) is the gold standard for inhibitor eradication, restoring factor VIII (FVIII) responsiveness.…
Did you miss the May 5th Wednesday Webinar? You can view it here and listen to Robert Sidonio, MD discuss the new VWD Guidelines and the most significant changes that healthcare providers and people with VWD should understand. This webinar is…
Hemophilia Treatment Centers (HTCs) across the United States are participating in the 2021 National HTC Patient Satisfaction Survey. If you, or someone you care for, had contact with the HTC in 2020, they want to hear from you! You can take the…
You may be eligible for lower-cost health coverage under the American Rescue Plan (ARP) law enacted in March 2021. If you buy your own health insurance (on- or off-Marketplace), or if you have recently lost your job, you may qualify for substantial…
Heavy Menstrual Bleeding Impact on Mental Health in Adolescent and Young Adult Women with Bleeding Disorders
Speaker: Angela Weyand, MD
Did you miss the May 12th Wednesday Webinar series? If so you can view it here and…
Post-partum Hemorrhage in Women with Bleeding Disorders
Speaker: Homa K. Ahmadzia, MD, MPH
Did you miss the May 19th Wednesday Webinar series? If so click here and listen to Homa K. Ahmadzia, MD, MPH discuss Post-partum…