State of the Science Research Summit
Speaker: Leonard A Valentino, MD; Michael Retch, MD
Did you miss the June 23rd Wednesday Webinar on the State of the Science Research Summit? Listen to NHF President and CEO Leonard A…
VWD Guidelines and Shared Decision-making
Speaker: Nathan Connell, MD, MPH; Paula James, MD; Jean Grow, PhD
Did you miss the June 30th Wednesday Webinar series in the new VWD Guidelines and Shared Decision Making? If so…
The inherited bleeding disorders community has seen significant advancements in care, thanks to new therapeutics and technologies, and improved diagnostics. Yet there are still important and persistent gaps in care today, particularly for those with…
NBDF considers the BDRC as an opportunity to address gaps in knowledge that can improve the lives of people affected by inheritable bleeding disorders. We want to ensure that the lived experience drives and influences the research process with…
FOR PUBLIC COMMENT - JUNE 3, 2021
This June marks a painful anniversary for the inheritable blood disorders community and the world. On June 5, 1981, the first cases of what would come to be known at HIV were reported by the…
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Scroll to explore NBDF's email newsletter archives from newest to oldest. Want to receive e-news from NBDF? Click here to subscribe. NBDF Health & Wellness eNewsletter - 11/26/21 - Life in the Time of COVID-19NBDF Health &…
Review the State of the Science Research Summit
Following the community listening sessions and working group efforts, individuals, families, and experts came together for the State of the Science Research Summit, on September 12-15,…
Objective:
The ongoing pediatric phase 3 paradigm 5 trial is assessing N9-GP (nonacog beta pegol, REBINYN®) use for routine prophylaxis and treatment of breakthrough bleeds in previously treated children with hemophilia B (FIX ≤2…
Introducing the Bleeding Disorders Research Collaborative (formerly the NRB)The purpose of the BDRC is to actualize an integrated research network that can accelerate our learnings to dramatically improve the experience of living with bleeding…