NBDF's Research Journal Club is a new endeavor that aims to bring researchers and community members together to discuss the latest science and innovative breakthroughs.Research Journal Club meetings are free to attend and will be held virtually on…
Media Relations ContactTime-sensitive requests: jpatel@bleeding.orgNon-urgent requests: communications@bleeding.org AboutFor 75 years, The National Bleeding Disorders Foundation (NBDF*) has championed research, education, and advocacy for…
Vishal Srivastava is working as a postdoctoral fellow in Dr. Bin Zhang’s lab at the Genomic Medicine Institute, Lerner Research Institute, Cleveland Clinic. He received his Ph.D. from the CSIR-Central Drug Research Institute/Jawaharlal Nehru…
Dr. Yuan Zhang obtained her Ph.D in microbiology from Wuhan University, China, in 2015. Her Ph.D work focused on creating new or more effective genetically engineered vaccines against human viruses. In 2016, she joined Dr. Bin Zhang’s group as a…
When you live with hemophilia with an inhibitor, you and your family have questions and concerns that deserve special attention. NHF’s 2021 Virtual Inhibitor Education Series will provide just that – quality education and meaningful…
When you have an ultra-rare bleeding disorder, it can be difficult to find the kind of specialized support you need. You need to talk to experts who understand the nuances of your disorder, and a community that knows what you…
The foundation's broad and diverse portfolio of brands and programming serve all those in the inheritable blood disorders community. Everyone – whether a patient, caregiver, loved one, or advocate – deserves accessible support and resources unique…
Objective:
Demonstrate the success of collaborative efforts between the specialized multidisciplinary Infusion Pharmacy Provider (IPP), the prescriber, patient and payer, in achieving improved outcomes.
Methods:…
In this review, the authors discuss some of the primary considerations relevant to investigational gene therapies that employ adeno-associated viral (AAV) vectors, with particular focus on immunogenicity and genotoxicity – the former denotes the…
While it has been well established that bleeding disorders camps (BDCs) in the U.S. have played a key part in empowering affected children for decades, comprehensive knowledge of their capacity and functioning is historically lacking.In order to…