Shared decision making (SDM), the concept by which patients and healthcare providers work closely together to arrive at personalized treatment-related decisions, can have significant positive impacts for individuals with hemophilia. It fosters a…
NHF is very pleased to announce that the Kevin Child Scholarship (KCS) application deadline has been set for August 2, 2021! The scholarship is named in tribute to Kevin Child, who died of AIDS in 1989, shortly before graduating from college. It is…
The U.S. Food and Drug Administration (FDA) has placed a clinical hold on Sigilon Therapeutics’ phase 1/2 study of SIG-001 in patients with severe or moderately severe hemophilia A.
SIG-001 is a cell-based therapy, designed to carry significant…
The University of California at San Diego (UCSD) School of Medicine has launched a new CME-accredited curriculum designed to offer more accessible, comprehensive virtual training on point-of-care musculoskeletal ultrasound (MSKUS).
The trainings…
Media Contact:
Brett Spitale, VP of Advancement
bspitale@hemophilia.org
646-784-0368
New York, NY - On Thursday, July 22, 2021 the Department of Health and Human Services (HHS), through the Centers for Medicare & Medicaid…
General Information
Registration is required for this event. Reserve your spot in the club today!
When: July 29th, 2pm – 3pm EST on Zoom
After registering, you will receive a confirmation email containing information about joining the…