Rare Series: Current Treatments for Rare Bleeding Disorders
This session will discuss current treatment options for rare factor deficiencies and platelet dysfunctions. It will also provide practical tips about what information will foster an effective discussion with your hematology care provider about your…
Inhibitor Education Series: Ask the Experts
Do you have a burning question to ask our panel of experts? This session will offer participants an opportunity to interact, engage, and ask thought-provoking questions to a panel of interdisciplinary healthcare providers in real time.
Inhibitor Education Series: Baby Steps Navigating Past the Pandemic
After a challenging year driven by the COVID19 pandemic, we are looking forward to a new normal. But how does re-entering society impact mental health and what are specific implications for the bleeding disorder community? In this session, we will…
Rare Series: Baby Steps Navigating Past the Pandemic
After a challenging year driven by the COVID19 pandemic, we are looking forward to a new normal. But how does re-entering society impact mental health and what are specific implications for the bleeding disorder community? In this session, we will…
Pregunte a los expertos
¿Tiene una pregunta candente que hacerle a nuestro panel de expertos? Esta sesión ofrecerá a los participantes la oportunidad de interactuar, participar y hacer preguntas que inviten a la reflexión a un panel de proveedores de atención médica…
El Costo de la Reentrada
Después de un año difícil impulsado por la pandemia de COVID19, esperamos una nueva normalidad. Pero, ¿cómo afecta la reincorporación a la sociedad a la salud mental y cuáles son las implicaciones específicas para la comunidad de trastornos…
Antibody-mediated FV/FVa resistance as a therapeutic approach for hemophilia
Dr. Sean Quinn is a postdoctoral fellow at the Children’s Hospital of Philadelphia in the laboratory of Dr. Rodney Camire. Dr. Quinn received his doctoral degree in Biochemistry/Biophysics from Rensselaer Polytechnic Institute in 2019. For his JGP…
NHF Awarded NIH Grant for State of the Science Research Summit
FOR IMMEDIATE RELEASE Media Contact Ilana Ostrin iostrin@hemophilia.org 212-328-3769 NHF Awarded NIH Grant for State of the Science Research Summit Additional Funding Will Aid Community Collaboration at First-Time Event New York, NY —…
A survey among patients with hemophilia and inhibitors seeking treatment in non-hemophilia treatment centers
Objective: Acute bleeds in patients with rare bleeding disorders (RBDs), including congenital hemophilia with inhibitors (CHwI), acquired hemophilia, congenital factor VII deficiency, and Glanzmann’s thrombasthenia (GT) must be…
Jason Fulton Memorial Leadership Fund
Honoring the Legacy of Jason FultonJason Fulton lived with courage, purpose, and joy. Driven and vibrant, he pursued a rich, meaningful life despite complications from his hemophilia diagnosis and treatment. Jason believed deeply in…