What is the Burden of Problem Joints with Hemophilia?
Speaker: Paul McLaughlin, MSc, MMACP, MCSP, Clinical Specialist Physiotherapist in Haemophilia at the Katharine Dormandy Haemophilia Centre at Royal Free Hospital in London…
WFH Gene Therapy Registry to Track Long Term Safety and Efficacy
Speakers: Glenn Pierce, MD, PhD, Vice President, Medical, WFH and Donna Coffin, MSc, Head of Research, WFH
Did you miss the April 21st Wednesday Webinar? If so you…
HTC Patient Satisfaction Survey
Speakers: Judith R. Baker, DrPH, MHSA; Brenda Riske, MS, MBA, MPA
Did you miss the April 28th Wednesday Webinar? You can view it here and listen to Judith R. Baker, DrPH, MHSA; Brenda Riske,…
Objectives:
This study has a primary objective to determine the efficacy of VWF/FVIIII concentrate (Wilate) in the prophylactic treatment of previously treated patients with type 3, type 2 (except 2N), or severe type 1 VWD.…
Dear NHF Family,
Like everyone else, I was closely following the trial and eventual verdict in the case of Derek Chauvin for the murder of George Floyd, and I know that many of you were anxiously awaiting as well. Mr. Floyd’s death was senseless…
Samantha Carlson is the director of research at the National Bleeding Disorders Foundation, where she engages and supports diverse individuals and groups in ways that are meaningful, inclusive, and accessible, with the goal of making research…
Kevin Mills, PhD has joined the National Hemophilia Foundation as chief scientific officer.
A graduate of University of Colorado Boulder, MIT, and Harvard Medical School, Dr. Mills will be responsible for overseeing NHF’s research strategy,…
uniQure recently announced that the U.S. Food and Drug Administration (FDA) has removed a clinical hold on their hemophilia B gene therapy program. The FDA had determined that uniQure satisfactorily addressed all issues raised by the agency that…
NHF's Wednesday Webinars for May 2021 will focus on Women's Health Month, featuring topics of interest to both patients and healthcare providers who are interested in issues faced by women with inheritable blood disorders.
May…