Reducing Severe Bleeding Symptoms in Hemophilia by Lowering Fibrinolysis
Dr. Ze Zheng is an Assistant Professor at the Medical College of Wisconsin and an Assistant Investigator at the Versiti Blood Research Institute (Blood Center of Wisconsin). She received her MBBS in Clinical Medicine from Jiamusi University in China…
Gene Therapy for Hemophilia: Patient Preferences and Shared-Decision Making
Dr. Courtney Thornburg is the Director of the Hemophilia and Thrombosis Treatment Center at Rady Children’s Hospital San Diego and Professor of Pediatrics at the University of California-San Diego. Dr. Thornburg graduated from Duke University…
Health Services Guide for Bleeding Disorder Camps
A professor and dual certified nurse practitioner in pediatrics and adults.  She completed her PhD in Educational and Organizational Leadership and taught for 10 years specializing in camp nursing, service leadership, physiology, and hematology…
Pilot Study of Telemedicine vs In Person Physical Therapy Intervention for Hemophilia
Elizabeth Hall is the physical therapist for the Hemophilia and Thrombosis Treatment Center (HTC) at Rady Children’s Hospital San Diego (RCHSD). She has worked at RCHSD for over ten years and has worked closely with Dr. Thornburg for the past seven…
Post-Traumatic Stress Disorder (PTSD) and Posttraumatic Stress Symptoms (PTSS) Among Adults with Hemophilia A and B
Amanda Stahl, MSW, LICSW is the social worker for adult patients at the Boston Hemophilia Center at Brigham and Women’s Hospital, where she has been providing clinical services to patients with bleeding disorders since 2015. She participates in…
FDA Partially Rescinds Added Indications for Two FIX Products
The U.S. Food and Drug Administration (FDA) has partially rescinded a pair of supplemental Biologics License Applications (BLAs) the agency had granted, in error, for two recombinant factor IX products, BeneFIX® (Pfizer) and IXINITY (Aptevo). The…
Correcting Bleeding Disorders Using Blood Clotting Factors Produced in vivo by Encapsulated Engineered Allogeneic Human Cells
Wednesday Webinar: Cellular Therapies for Hemophilia 
Did you miss the Wednesday Webinar Series on March 3rd? If so you can review the recording here. Join Amy Shapiro, MD and Deya Corzo, MD, FACMG to discuss Cellular Therapies for Hemophilia.   Register Here
Wednesday Webinar: New Guidelines for VWD: Patient Perspective
Were you unable to join us for our Wednesday Webinar series? If so you can review the recording here and see Nathan T. Connell, MD; Vicki Jacobs-Pratt; and Nikole Scappe discuss the New Guidelines for VWD: Patient Perspective. These guidelines…
March 2021 Wednesday Webinar Schedule
NHF's Wednesday Webinars for March 2021 will feature an array of speakers and topics of interest to both healthcare providers and patients and families with blood disorders alike. March Webinars All webinars are from 2:00pm-3:00pm ET.…