This session will present findings from a national needs assessment conducted by NBDF in partnership with the CDC about the experiences and needs of people with bleeding disorders within African American communities. The group will discuss…
Factor XIII deficiency is classified under rare bleeding disorders and is in fact, the rarest with an incidence of 1 in 2 to 3 million births and is inherited in an autosomal recessive manner. On the other hand, Von Willebrand Disease (VWD) is the…
This session will commemorate and reflect on the landmark legislation on HIV/AIDS care with a renewed call to action for the bleeding disorders community to be vigilant and engaged healthcare policy advocates.
These are exciting times in hemophilia research, with many new treatment options on the horizon. Come learn about the latest results of various phases of clinical trials on gene therapy and other new treatment options to see what the future holds…
An update on safety and supply issues relating to blood and therapeutic products used by people with bleeding disorders. This will include discussion of product recalls the past two years, the January 2020 NBDF/HFA Safety Summit convened by the…
When you have an ultra-rare bleeding disorder, it can be difficult to find the kind of specialized support you need. You need to talk to experts who understand the nuances of your disorder, and a community that knows what you’re going…