Objective:
The impact of hemophilia on working life, the ability to pursue a desired career or sustain full employment have been previously reported. The aim of this analysis was to seek a better understanding of hemophilia-…
CSL Behring has announced a voluntary pharmacy level product recall of one batch of Mononine Coagulation Factor IX (Human), a plasma-derived product used to treat hemophilia B. CSL Behring’s notification states, “Patients can continue…
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BioMarin recently announced positive updates from its ongoing phase 3 GENEr8-1 study of valoctocogene roxaparvovec, an investigational gene therapy for the treatment of adults with severe hemophilia A. The trial currently includes 134 participants,…
Did you miss our Wednesday Webinar on February 10th? If so you can review the recording here.
What is the potential of gene therapy to treat sickle cell disease? Join Erica Esrick, MD of Boston Children's Hospital/Dana-Farber Cancer Institute…
While we often speak about heavy menstruation in women with bleeding disorders, we don't discuss the impact on the musculoskeletal structures. In this webinar we will apply a physical therapy lens to pelvic health and will explore what effect…
Did you miss our Wednesday Webinar on March 10th? If so you can review the recording here.
Join Michael Craciunoiu, Ed.M, PCC as he discusses Chapter Support and Growth in 2021.
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Were you unable to join us for our Wednesday Webinar Series? If so you can view the recording here as Jill Johnsen, MD discusses her current research on carriers of hemophilia and My Life Our Future.
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Did you miss our Wednesday Webinar on February 17th? If so you can review the recording here.
The pace of vaccination is accelerating. How will the economy react to this news and that of new variants? What can you watch to understand how…