The National Hemophilia Foundation (NHF) is pleased to announce the appointment of three new board members, Paulette Charese Bryant, MD, FAAP; Maria Eileen V. San Juan, MSPT, and Kai Brown, MBA to help guide NHF in to a successful future.…
The following is an excerpt from a press release from uniQure. Read the update in its entirety.
Today uniQure announced a clinical hold by the U.S. Food and Drug Administration (FDA) in its phase III HOPE-B: Trial of AMT-061 in Severe or…
The following educational sessions were first presented during NHF’s Virtual Bleeding Disorders Conference, held August 1-8, 2020. Developed through the effort and planning of NHF’s Physical Therapy Working Group members, the sessions feature a…
The session will discuss pain related to bleeding disorders in the developmental stages and how infants, children and adolescents with bleeding episodes experience, express and cope with pain. It will review the latest research on management and…
The National Hemophilia Foundation is thrilled to announce that its top legislative priority in 2020, The Hemophilia SNF Access Act, was included in the end-of-year omnibus federal spending and economic relief package passed by Congress on December…
Hemophilia is a uniquely challenging and sometimes perplexing condition for physical therapists to manage and treat. Physical therapists who see patients across the lifespan may manage conditions that range from athletic injuries to frailty.…
This session will take a deep dive into identification and management of acute to chronic iliopsoas bleeds. Is the psoas to blame for all hip pain?
Total joint replacements can be performed safely in people with bleeding disorders. In this session, we will address realistic expectations, possible complications, and potential outcomes of total joint replacement surgery in patients with bleeding…
Patients are increasingly turning to cannabis-related pharmaceuticals for pain relief and management. This session will address the available evidence, and the negative or positive hype from the facts, and discuss the need for more research.…