Skip to main content
 
Paid Advertisement.
 NBDF does not endorse products or manufacturers.
Leaderboard Ad

Top area menu

  • News
  • Events
Home
menu burger
  • Give
  • Subscribe

Main navigation

  • Who We Are
  • Bleeding Disorders A-Z
  • Educational Programs
  • Advocacy
  • Research
  • Healthcare Professionals
  • Community Resources
  • Make a Difference
  • Our Story
  • Mission & History
  • What We Do
  • What Do We Value?
  • Health Access
  • NBDF Reports
  • Financial Statements
  • Media Newsroom
  • Educate to Elevate
  • The National Hemophilia Foundation Has a New Name
  • The Red Thread: 75th Anniversary Celebration
  • Our Team
  • Staff
  • Board of Directors
  • MASAC
  • Meet the NYLI
  • Nursing Working Group
  • Physical Therapy Working Group
  • Social Work Working Group
  • LEE Research Advisory Council
  • Our Partners
  • Partners In Progress
  • The ACT Initiative
  • Red Tie Society
  • CDC Coop Agreement
  • Pathway to Cures
  • Careers
  • What Do We Value?
  • Career Opportunities
  • Volunteer Opportunities
  • Overview
  • Fast Facts
  • What is a Bleeding Disorder?
  • History
  • Types of Bleeds
  • Inhibitors
  • Women and Bleeding Disorders
  • Types
  • Hemophilia A
  • Hemophilia B
  • Von Willebrand Disease
  • Other Factor Deficiencies
  • Inherited Platelet Disorders
  • Treatment
  • Comprehensive Medical Care
  • MASAC For You
  • Treatment Guidelines (MASAC)
  • Current Treatments
  • Innovative Therapies
  • Clinical Trials
  • Shared Decision-Making
  • Hemophilia Treatment Centers
  • Healthcare Coverage
  • Choosing an Insurance Plan
  • Private Insurance
  • Public Insurance
  • Health Insurance Toolkit
  • Education
  • Bleeding Disorders Conference
  • Inhibitor Education
  • Steps for Living
  • Online Education
  • Rare Bleeding Disorders
  • Von Willebrand Disease
  • Mental Health
  • Gene and Innovative Therapies
  • Women
  • Educational Programming
  • Clotting Cascade
  • Training
  • Youth Leadership (NYLI)
  • Outreach
  • THRIVE
  • THRIVE - en español
  • Undiagnosed
  • Guías Culturales
  • Federal Priorities
  • Access to Care
  • Federal Programs
  • Medicare
  • Medicaid
  • Blood & Blood Product Safety
  • Make All Copays Count
  • State Priorities
  • Utilization Management
  • Patient Out-of-Pocket Expenses
  • Medicaid
  • How You Can Take Action
  • Voices for Policy Change!
  • Washington Days
  • Advocacy Do’s and Don’ts
  • 6 Steps for Grassroots Advocacy
  • Tell Your Story
  • Managed Care & Payers
  • Collaborating on Coverage
  • Quality of Care Guidelines
  • CME/CE Webcast Series
  • Educational Web Portal
  • Quality Improvement & Cost Management
  • Research Projects
  • Foundation Research
  • Funded by Foundation
  • Presented at Our Conference
  • Research Journal Club
  • Research Roundtable
  • Clinical Trial Essentials
  • coreHem Mental Health Tool
  • Fund Your Research
  • Judith Graham Pool Postdoctoral Research Fellowship
  • NBDF-Sanofi Career Development Award
  • Nursing Excellence Fellowship
  • Physical Therapy Excellence Fellowship
  • Social Work Excellence Fellowship
  • Community Voices in Research
  • What is CVR?
  • How & Why Should I Participate?
  • Impact on Research
  • Frequently Asked Questions
  • Login to CVR
  • Bleeding Disorders Research Collaborative
  • What is the Bleeding Disorders Research Collaborative?
  • The BDRC Structure and Research Priorities
  • Lived Experience Experts (LEEs) Leading the Way
  • How to Get Involved
  • Our Journey Together
  • BDRC Resources
  • Guidelines on Care
  • Comprehensive Care
  • MASAC Documents
  • MASAC Minutes
  • Products Licensed (US)
  • Emergency Management
  • Snapshots of VWD Guidelines
  • Education & Resources
  • NBDF-Takeda Clinical Fellowship Program
  • NBDF’s Collaborative Learning Exchange
  • Online Education for Providers
  • Live & Online Learning (Partners Program)
  • Rare Coagulation Disorders Resource Room
  • NBDF Publications
  • Peer-reviewed Journals
  • Other Associations
  • Allied Healthcare
  • Nursing
  • Physical Therapy
  • Social Work
  • Other Interdisciplinary Healthcare Providers
  • Request Information
  • Contact Us
  • The Neil Frick Resource Center
  • Read Our Publications
  • Subscribe for Email Updates
  • Get HemAware Magazine
  • Newsletter Archive
  • Wednesday Webinar Series
  • Resources Near You
  • Chapters
  • Hemophilia Treatment Centers
  • Clinical Trials
  • Bleeding Disorders Camps
  • Community Voices in Research
  • Financial Assistance
  • Scholarships
  • Patient Assistance Programs
  • Donate
  • Donate Now
  • Donor Advised Funds
  • Donate Securities or Cryptocurrency
  • Give Monthly
  • Planned Giving
  • Join Us
  • Become a Corporate Partner
  • Bleeding Disorders Awareness Month
  • Find a Walk
  • Participate in Research/CVR
  • Why Give?
  • More than a Donation
  • Create Your Own Fundraiser
  • Fundraise on Social Media
  • Run in a Marathon
  • Matching Gifts
Home
  • Who We Are
    • Our Story
      • Mission & History
      • What We Do
      • What Do We Value?
      • Health Access
      • NBDF Reports
      • Financial Statements
      • Media Newsroom
      • Educate to Elevate
      • The National Hemophilia Foundation Has a New Name
      • The Red Thread: 75th Anniversary Celebration
    • Our Team
      • Staff
      • Board of Directors
      • MASAC
      • Meet the NYLI
      • Nursing Working Group
      • Physical Therapy Working Group
      • Social Work Working Group
      • LEE Research Advisory Council
    • Our Partners
      • Partners In Progress
      • The ACT Initiative
      • Red Tie Society
      • CDC Coop Agreement
      • Pathway to Cures
    • Careers
      • What Do We Value?
      • Career Opportunities
      • Volunteer Opportunities
  • Bleeding Disorders A-Z
    • Overview
      • Fast Facts
      • What is a Bleeding Disorder?
      • History
      • Types of Bleeds
      • Inhibitors
      • Women and Bleeding Disorders
    • Types
      • Hemophilia A
      • Hemophilia B
      • Von Willebrand Disease
      • Other Factor Deficiencies
      • Inherited Platelet Disorders
    • Treatment
      • Comprehensive Medical Care
      • MASAC For You
      • Treatment Guidelines (MASAC)
      • Current Treatments
      • Innovative Therapies
      • Clinical Trials
      • Shared Decision-Making
      • Hemophilia Treatment Centers
    • Healthcare Coverage
      • Choosing an Insurance Plan
      • Private Insurance
      • Public Insurance
      • Health Insurance Toolkit
  • Educational Programs
    • Education
      • Bleeding Disorders Conference
      • Inhibitor Education
      • Steps for Living
      • Online Education
      • Rare Bleeding Disorders
      • Von Willebrand Disease
      • Mental Health
      • Gene and Innovative Therapies
      • Women
      • Educational Programming
      • Clotting Cascade
    • Training
      • Youth Leadership (NYLI)
    • Outreach
      • THRIVE
      • THRIVE - en español
      • Undiagnosed
      • Guías Culturales
  • Advocacy
    • Federal Priorities
      • Access to Care
      • Federal Programs
      • Medicare
      • Medicaid
      • Blood & Blood Product Safety
      • Make All Copays Count
    • State Priorities
      • Utilization Management
      • Patient Out-of-Pocket Expenses
      • Medicaid
    • How You Can Take Action
      • Voices for Policy Change!
      • Washington Days
      • Advocacy Do’s and Don’ts
      • 6 Steps for Grassroots Advocacy
      • Tell Your Story
    • Managed Care & Payers
      • Collaborating on Coverage
      • Quality of Care Guidelines
      • CME/CE Webcast Series
      • Educational Web Portal
      • Quality Improvement & Cost Management
  • Research
    • Research Projects
      • Foundation Research
      • Funded by Foundation
      • Presented at Our Conference
      • Research Journal Club
      • Research Roundtable
      • Clinical Trial Essentials
      • coreHem Mental Health Tool
    • Fund Your Research
      • Judith Graham Pool Postdoctoral Research Fellowship
      • NBDF-Sanofi Career Development Award
      • Nursing Excellence Fellowship
      • Physical Therapy Excellence Fellowship
      • Social Work Excellence Fellowship
    • Community Voices in Research
      • What is CVR?
      • How & Why Should I Participate?
      • Impact on Research
      • Frequently Asked Questions
      • Login to CVR
    • Bleeding Disorders Research Collaborative
      • What is the Bleeding Disorders Research Collaborative?
      • The BDRC Structure and Research Priorities
      • Lived Experience Experts (LEEs) Leading the Way
      • How to Get Involved
      • Our Journey Together
      • BDRC Resources
  • Healthcare Professionals
    • Guidelines on Care
      • Comprehensive Care
      • MASAC Documents
      • MASAC Minutes
      • Products Licensed (US)
      • Emergency Management
      • Snapshots of VWD Guidelines
    • Education & Resources
      • NBDF-Takeda Clinical Fellowship Program
      • NBDF’s Collaborative Learning Exchange
      • Online Education for Providers
      • Live & Online Learning (Partners Program)
      • Rare Coagulation Disorders Resource Room
      • NBDF Publications
      • Peer-reviewed Journals
      • Other Associations
    • Allied Healthcare
      • Nursing
      • Physical Therapy
      • Social Work
      • Other Interdisciplinary Healthcare Providers
  • Community Resources
    • Request Information
      • Contact Us
      • The Neil Frick Resource Center
      • Read Our Publications
      • Subscribe for Email Updates
      • Get HemAware Magazine
      • Newsletter Archive
      • Wednesday Webinar Series
    • Resources Near You
      • Chapters
      • Hemophilia Treatment Centers
      • Clinical Trials
      • Bleeding Disorders Camps
      • Community Voices in Research
    • Financial Assistance
      • Scholarships
      • Patient Assistance Programs
  • Make a Difference
    • Donate
      • Donate Now
      • Donor Advised Funds
      • Donate Securities or Cryptocurrency
      • Give Monthly
      • Planned Giving
    • Join Us
      • Become a Corporate Partner
      • Bleeding Disorders Awareness Month
      • Find a Walk
      • Participate in Research/CVR
      • Why Give?
    • More than a Donation
      • Create Your Own Fundraiser
      • Fundraise on Social Media
      • Run in a Marathon
      • Matching Gifts
  • Give
  • Subscribe
NBDF’s Established Initiatives & Impact >
  • News
  • Events

Search

  1. Home
  2. Search
JGP Chapter Support List
The Judith Graham Pool Research Fellowships are sustained 100% by the generosity of the bleeding disorders community, including chapters, individuals and foundations. NBDF does not accept any pharmaceutical funding to maintain this program.Below are…
Chapter Support 2022
The Judith Graham Pool Research Fellowships are sustained 100% by the generosity of the bleeding disorders community, including chapters, individuals and foundations. NBDF does not accept any pharmaceutical funding to maintain this program.Below are…
Health Center Standards for Camps Serving Persons with Bleeding Disorders
Bleeding disorder summer camps vary in their health care needs based on size, availability of trained medical persons on staff, and distance from professional medical facilities. They do not vary in their need for comprehensive health center…
Política de Privacidad de CVR
Esta Política de Privacidad explica las políticas establecidas por la Fundación Nacional de Hemofilia (National Bleeding Disorders Foundation, NBDF por sus siglas en inglés) para proteger la información y la privacidad de los participantes mientras…
CVR Privacy Policy
This Privacy Policy explains the policies put in place by the National Bleeding Disorders Foundation (NBDF) to protect the participants’ information and privacy as they interact with the CVR registry.  Your participation in CVR constitutes…
HOPE-B: Study design of a Phase III trial of an investigational gene therapy AMT-061 in subjects with severe or moderately severe hemophilia B
Mary Warner
Wayne Nivin
Felix Garcia
uniQure Announces Positive Results from Phase 3 Gene Therapy Trial
uniQure recently announced new data from its phase 3 HOPE-B trial of etranacogene dezaparvovec, the company’s investigational gene therapy candidate for patients with severe and moderately severe hemophilia B. The therapy consists of an adeno-…

Pagination

  • First page
  • Previous page
  • …
  • Page 96
  • Page 97
  • Page 98
  • Page 99
  • Current page 100
  • Page 101
  • Page 102
  • Page 103
  • Page 104
  • …
  • Next page
  • Last page

Contact us

1230 Avenue of the Americas 16th Floor, New York, NY 10020, United States
212.328.3700
212.328.3777

About

  • What We Do
  • Our Team
  • Careers
  • Request Information

Resources

  • Chapters
  • HTC Search
  • Clinical Trials
  • Scholarships
  • Camp Near You
  • CVR

Legal

  • Privacy Policy
  • Medical Disclaimer
  • Gift Acceptance
  • Conflict of Interest
  • Whistleblower
  • Translation Policy

Give

  • Donate
  • Fundraise
  • Other Ways to Give
  • Why Give?

NBDF White

Candid Seal Platinum Charity Navigator

©  National Bleeding Disorders Foundation
All rights reserved.