Many people with bleeding disorders, as well as caregivers, report that bleeding disorders impact their work life and job choices. This webcast explores ways that people with bleeding disorders and caregivers can work with employers to successfully…
Deciding when and how to talk about a bleeding disorder can be challenging, but it is an important part of life for people with bleeding disorders and caregivers. This session explores ways to communicate about bleeding disorders in real-life…
Introduction and Objectives:
Von Willebrand disease (VWD) is the most common bleeding disorder, affecting men and women equally. Despite this, awareness surrounding VWD is low. Outreach efforts often only target women, leaving…
People with bleeding disorders and caregivers often educate schools, workplaces, health care teams and communities to ensure the right care and support to thrive. The Hemophilia Experiences, Results and Opportunities (HERO) study found that while…
Whether within friendships, romantic relationships, at school or in the workplace, an adult with hemophilia will confront the question of disclosing their bleeding disorder status many times over. Join us to learn techniques that will help you…
Spring is the season for renewal and a great time for healthy beginnings! Join us and learn about the best, complementary practices to help your child develop healthy, active habits that he or she can benefit from for a lifetime.
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What exactly is meant by individualized therapy? What might be the future treatment and quality-of-life implications for hemophilia patients? Learn more about this state-of-the-art approach to care, and how it could improve the health of a person…
Let's get moving! This free webinar, led by expert physical therapists, will help you find the right activity for you. You will learn how to work with your healthcare providers to find engaging exercises that will benefit you, regardless of your…
Tune in to learn more about the full potential for prophylaxis, exercise and a healthy weight to ensure joint health and enhance the lives of teens with hemophilia.
Transcription of "Prophylaxis, Teens and Adherence"…
Intimacy and relationships can have special dynamics for people with bleeding disorders and for caregivers of a child with a bleeding disorder. This module explores ways to strengthen physical, emotional, social, intellectual and spiritual…