Whether within friendships, romantic relationships, at school or in the workplace, an adult with hemophilia will confront the question of disclosing their bleeding disorder status many times over. Join us to learn techniques that will help you…
Spring is the season for renewal and a great time for healthy beginnings! Join us and learn about the best, complementary practices to help your child develop healthy, active habits that he or she can benefit from for a lifetime.
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What exactly is meant by individualized therapy? What might be the future treatment and quality-of-life implications for hemophilia patients? Learn more about this state-of-the-art approach to care, and how it could improve the health of a person…
Let's get moving! This free webinar, led by expert physical therapists, will help you find the right activity for you. You will learn how to work with your healthcare providers to find engaging exercises that will benefit you, regardless of your…
Tune in to learn more about the full potential for prophylaxis, exercise and a healthy weight to ensure joint health and enhance the lives of teens with hemophilia.
Transcription of "Prophylaxis, Teens and Adherence"…
Intimacy and relationships can have special dynamics for people with bleeding disorders and for caregivers of a child with a bleeding disorder. This module explores ways to strengthen physical, emotional, social, intellectual and spiritual…
Many people with bleeding disorders find that bleeding-related pain and joint damage impact their quality of life, according to patients and caregivers surveyed in the Hemophilia Experiences, Results and Opportunities (HERO) study conducted by…
It's time to clear up the confusion about half-life of clotting factor. You will leave this session with a deeper understanding of how long factor replacement lasts in a person's body, how it prevents joint bleeds and allows for physical activity,…
The issue of disclosure is not always as straightforward as it might seem. The question of when and how to talk about one's bleeding disorder can be complicated and will arise many times in a person’s life. Watch the online webinar as social worker…