This pre-recorded session is a part of the virtual Rare Bleeding Disorders Conference. It will explain the diagnosis, symptoms and treatment options of both Glanzmann's Thrombasthenia and Bernard-Soulier Syndrome.
Speaker: Jim Munn…
You will learn the anatomy and function of the elbow and how to manage the elbow joint with activities of daily life and physical activity.
With all the fitness apps out there, it can be overwhelming to decide the best fit for you. In this session, we will discuss the role technology can play in starting and staying active. Learn suggestions of fitness apps to use to keep you motivated…
Parenting a child with a bleeding disorder can come with many questions. Come ready to get your questions answered. In this session, you will learn how to encourage your baby to be active, explore safely and how to handle potential accidents as they…
It is a reality familiar to most adults with hemophilia of a certain age: repeated joint bleeds which subsequently causes joint deterioration, affecting everyday quality of life. But the story does not have to end there. Learn how prophylactic…
Life with a chronic condition can be challenging at times, adding stress to the lives of people with bleeding disorders and their caregivers. The Hemophilia Experiences, Results and Opportunities (HERO) study, conducted by Novo Nordisk,…
Many people with bleeding disorders, as well as caregivers, report that bleeding disorders impact their work life and job choices. This webcast explores ways that people with bleeding disorders and caregivers can work with employers to successfully…
Deciding when and how to talk about a bleeding disorder can be challenging, but it is an important part of life for people with bleeding disorders and caregivers. This session explores ways to communicate about bleeding disorders in real-life…
Introduction and Objectives:
Von Willebrand disease (VWD) is the most common bleeding disorder, affecting men and women equally. Despite this, awareness surrounding VWD is low. Outreach efforts often only target women, leaving…
People with bleeding disorders and caregivers often educate schools, workplaces, health care teams and communities to ensure the right care and support to thrive. The Hemophilia Experiences, Results and Opportunities (HERO) study found that while…