Basics of Factor 7 Deficiency
This pre-recorded session is a part of the virtual Rare Bleeding Disorders Conference. It will explain the diagnosis, symptoms and treatment options of Factor 7 Deficiency. Speaker:  Suchitra Acharya, MD
Inhibitor Teams: building stronger connections and deeper learning
Introduction and Objectives: The National Hemophilia Foundation (NHF) has offered the Inhibitor Education Summits (also known as the summits), a live consumer education conference, annually for more than ten years. The summits…
Basics of Factor 13 Deficiency
This pre-recorded session is a part of the virtual Rare Bleeding Disorders Conference. It will explain the diagnosis, symptoms and treatment options of Factor 13 Deficiency. Speaker:  Suchitra Acharya, MD
Basics of Factor 5 Deficiency
This pre-recorded session will explain the diagnosis, symptoms and treatment options of Factor 5 Deficiency, Combined Factor 5 and Factor 8 Deficiency and Factor Five Short, also known as east Texas Bleeding Disorder. Speaker:  Sweta…
Basics of Glanzmann’s Thrombasthenia Bernard-Soulier Syndrome
This pre-recorded session is a part of the virtual Rare Bleeding Disorders Conference. It will explain the diagnosis, symptoms and treatment options of both Glanzmann's Thrombasthenia and Bernard-Soulier Syndrome. Speaker:  Jim Munn…
Meet the Joint: Elbow
You will learn the anatomy and function of the elbow and how to manage the elbow joint with activities of daily life and physical activity.
Technology & Fitness: Using technology as a Part of Your Fitness Routine
With all the fitness apps out there, it can be overwhelming to decide the best fit for you. In this session, we will discuss the role technology can play in starting and staying active. Learn suggestions of fitness apps to use to keep you motivated…
What to Know: Parenting with a Baby with a Bleeding Disorder
Parenting a child with a bleeding disorder can come with many questions. Come ready to get your questions answered. In this session, you will learn how to encourage your baby to be active, explore safely and how to handle potential accidents as they…
The Advantage of Prophylaxis for Adults with Joint Issues
It is a reality familiar to most adults with hemophilia of a certain age:  repeated joint bleeds which subsequently causes joint deterioration, affecting everyday quality of life. But the story does not have to end there. Learn how prophylactic…
Skills for Coping with Anxiety and Depression
Life with a chronic condition can be challenging at times, adding stress to the lives of people with bleeding disorders and their caregivers.  The Hemophilia Experiences, Results and Opportunities (HERO) study, conducted by Novo Nordisk,…