Joint health in patients with hemophilia A: analysis from the CHOICE survey
Access the World's Largest Hemophilia Repository
While research in hemophilia has advanced tremendously in recent decades, there is still so much to learn about the individual experience of people with various types of hemophilia. This is why NHF partnered together with the American Thrombosis…
Highlights from NHF's Virtual Insurance and Reimbursement Conference
From October 26th to 29th, 192 HTC social workers, nurses, and chapter leaders from 41 states took part in NHF's Virtual Insurance and Reimbursement Conference— Access During Uncertain Times. The focus of this conference was understanding the impact…
Americans Believe Government Should Require Copay Assistance Be Applied to Out-of-pocket Costs
The National Hemophilia Foundation (NHF) today released results from a new national online survey of registered voters that illustrates the importance and impact of patient copay assistance programs on patient affordability against the backdrop of…
NHF's Red Tie Soiree is a Virtual Success
The Red Tie Soiree, NHF's annual fundraising gala, draws hundreds of guests together to celebrate the achievements of the bleeding disorders community while raising critical funds. Though the format changed, this year's Soiree was full of excitement…
MASAC Document 262 - MASAC Resolution on Off-Site Hemostasis Testing
In this present era of cost containment, more and more health insurance companies are contracting with large national laboratories to perform off-site hemostasis testing. Specifically, testing for relatively common conditions such as von Willlebrand…
MASAC Document 290 - MASAC Recommendations Concerning Products Licensed for the Treatment of Hemophilia and Selected Disorders of the Coagulation System
Revisions: 284, 280, 276, 272, 263, 259, 253, 250, 249, 246, 240, 237, 235, 230, 225, 218, 217, 215, 210, 205, 202, 195, 190, 187, 182, 177Recommendations for Healthcare Providers and Physicians Treating Patients with Hemophilia A and B, von…
Supporting the Judith Graham Pool Fellowship
Investing in research that deepens our understanding of inheritable bleeding disorders and fuels new treatment options is important to the National Hemophilia Foundation (NHF). Launched in 1972, the Judith Graham Pool (JGP) Postdoctoral Research…
Public Health for Women & Girls
NOT AVAILABLE FOR CREDIT After a successful public health offering at NHF’s 2019 BDC, NHF decided to collaborate with several national blood disorder advocacy organizations to deliver two public health sessions for chapters and…
Public Health Pre Con: Future Therapies and Surveillance for Blood Disorders
NOT AVAILABLE FOR CREDIT After a successful public health offering at NBDF’s 2019 BDC, NBDF decided to collaborate with several national blood disorder advocacy organization to deliver two public health sessions for chapters…