With Patient Perspectives in Mind, ICER Evaluates Hemophilia Therapies
On October 30th, 2020, the Institute for Clinical and Economic Review (ICER) held a public meeting to discuss its evidence report on therapies for hemophilia A. ICER is an independent and non-partisan research organization that evaluates the…
NHF Announces 2020 Kevin Child Scholarship Winner
The National Hemophilia Foundation is delighted to announce that Brian Duval of Golden Valley, MN was selected as the recipient of the 2020 Kevin Child Scholarship (KCS). Brian has severe hemophilia A and is currently attending the…
Public Health Symposia Now Available on the NHF Website!
This summer's Virtual Bleeding Disorders Conference (BDC) featured a pair of excellent public health symposiums, which were developed through an inspired collaboration between NHF and several national blood disorder advocacy organizations. These…
Patient Advocacy Organizations Release Blueprint to Protect Access to Care
A coalition of 33 organizations, including the National Hemophilia Foundation, representing millions of people with pre-existing conditions launched an unprecedented effort today by releasing their top priorities for the next Administration. The…
First Patient Dosed in Phase 3 Gene Therapy Trial
Pfizer and Sangamo recently announced that the first patient has been dosed in the Phase 3 AFFINE (efficAcy and saFety Factor vIii geNe thErapy)…
First National HTC Patient Satisfaction Survey: The Results Are In
Results of the first ever nationally uniform patient satisfaction survey (PSS) of hemophilia treatment centers (HTCs), were recently published in the journal Haemophilia, the findings of which represent further validation of the HTC network and its…
Joint health in patients with hemophilia A: analysis from the CHOICE survey
Access the World's Largest Hemophilia Repository
While research in hemophilia has advanced tremendously in recent decades, there is still so much to learn about the individual experience of people with various types of hemophilia. This is why NHF partnered together with the American Thrombosis…
Highlights from NHF's Virtual Insurance and Reimbursement Conference
From October 26th to 29th, 192 HTC social workers, nurses, and chapter leaders from 41 states took part in NHF's Virtual Insurance and Reimbursement Conference— Access During Uncertain Times. The focus of this conference was understanding the impact…
Americans Believe Government Should Require Copay Assistance Be Applied to Out-of-pocket Costs
The National Hemophilia Foundation (NHF) today released results from a new national online survey of registered voters that illustrates the importance and impact of patient copay assistance programs on patient affordability against the backdrop of…