The hemophilia and thrombosis centers in Tucson and Phoenix would like to join efforts to make a meaningful contribution to our understanding of the mental health profile of our pediatric population. This knowledge could contribute to a more…
A survey link will be distributed to all hemophilia treatment center social workers with the ask that they forward on to the various staff members at their center. Social workers and other staff will have separate surveys. The questions will be…
Catalyst Biosciences recently announced that the U.S. Food and Drug Administration (FDA) has granted Fast Track Designation to marzeptacog alfa (MarzAA), the company’s subcutaneous (SQ) factor VIIa therapy. Catalyst is developing MarzAA for the…
Donald “Ziggy” Douglas, executive director of the Hawaii Chapter of the National Hemophilia Foundation, passed away at his home on November 8th, 2020.
Ziggy joined NHF in November 2017. His zeal for advocacy and for enriching the…
Join us this Friday, December 11th at 4:00 PM EDT for our Friday Webinar Series. Dr. Valentino will be joined this week by Dr. Phillip Jacobson, associate professor of pediatrics at Rush University and senior medical director of…
Pfizer and Sangamo have announced updated data from the phase 1/2 Alta study of giroctocogene fitelparvovec, an investigational gene therapy for patients with severe hemophilia A. The data was presented at the 62nd Annual American Society of…
The December 13th edition of the Centers of Disease Control and Prevention (CDC) Morbidity and Mortality Report (MMWR) includes interim recommendation for use of the Pfizer-BioNTech COVID-19 vaccine in persons aged 16 years and older for the…
Dr. Valentino was joined last week by Dr Phillip Jacobson, an associate professor of pediatrics at Rush University and the Senior Medical Director of Base10 Genetics, a company providing COVID testing and tracking for a variety of corporations…
Medscape recently launched “Gene Therapy and Hemophilia: What Every Nurse Should Know,” the latest educational activity in their “Clinical Advances in Gene Therapy for Hemophilia” series. Presented through a collaboration between…