Join us this Friday, December 11th at 4:00 PM EDT for our Friday Webinar Series. Dr. Valentino will be joined this week by Dr. Phillip Jacobson, associate professor of pediatrics at Rush University and senior medical director of…
Pfizer and Sangamo have announced updated data from the phase 1/2 Alta study of giroctocogene fitelparvovec, an investigational gene therapy for patients with severe hemophilia A. The data was presented at the 62nd Annual American Society of…
The December 13th edition of the Centers of Disease Control and Prevention (CDC) Morbidity and Mortality Report (MMWR) includes interim recommendation for use of the Pfizer-BioNTech COVID-19 vaccine in persons aged 16 years and older for the…
Dr. Valentino was joined last week by Dr Phillip Jacobson, an associate professor of pediatrics at Rush University and the Senior Medical Director of Base10 Genetics, a company providing COVID testing and tracking for a variety of corporations…
Medscape recently launched “Gene Therapy and Hemophilia: What Every Nurse Should Know,” the latest educational activity in their “Clinical Advances in Gene Therapy for Hemophilia” series. Presented through a collaboration between…
The National Hemophilia Foundation (NHF) is pleased to announce the appointment of three new board members, Paulette Charese Bryant, MD, FAAP; Maria Eileen V. San Juan, MSPT, and Kai Brown, MBA to help guide NHF in to a successful future.…
The following is an excerpt from a press release from uniQure. Read the update in its entirety.
Today uniQure announced a clinical hold by the U.S. Food and Drug Administration (FDA) in its phase III HOPE-B: Trial of AMT-061 in Severe or…
The following educational sessions were first presented during NHF’s Virtual Bleeding Disorders Conference, held August 1-8, 2020. Developed through the effort and planning of NHF’s Physical Therapy Working Group members, the sessions feature a…
The session will discuss pain related to bleeding disorders in the developmental stages and how infants, children and adolescents with bleeding episodes experience, express and cope with pain. It will review the latest research on management and…