Bayer recently announced that the company’s hemophilia A therapy Jivi® has been granted an expanded indication from the U.S. Food and Drug Administration (FDA). Jivi is a long-acting site-specifically PEGylated recombinant factor VIII therapy that…
LEE DefinitionLived Experience Experts (LEEs) are people living with an inheritable bleeding disorder, as well as their caregivers and family members who are directly impacted by the condition. Their diverse backgrounds and…
The coreVWD Initiative brought together a multi-stakeholder group to agree on a list of the most important outcomes to be recommended for inclusion in clinical trials. Join us for an informative and engaging webinar to review the core outcome set…
Dr. Laura Haynes received her PhD in biochemistry from the University of Vermont where she studied how flow conditions throughout the vasculature affect thrombin generation, as well as the role of the platelet membrane in modulating the structure/…
Since Pathway to Cures (P2C) launched in 2023, more than 200 early-stage biotechnology, pharma, medical device and diagnostic companies, with innovative approaches that address unmet needs in our blood and bleeding disorders community, have been…
Assessing the Wellbeing of Women with Bleeding Disorders: Focus on Bone and Mental HealthA live virtual educational activityDate: Monday, June 30, 2025Time: 3:30pm-4:30pm ESTJointly provided by Partners for…
Because May is Mental Health Awareness Month, the Neil Frick Resource Center (NFRC) is dedicating its most recent Resource Round Up (formerly HANDI Highlights) to supporting mental well-being. This edition…
Keri Norris, PhD, JM, MPH, MCHES, Senior Vice President, Health Access and Strategic Innovation, of the National Bleeding Disorders Foundation is a Fierce DEI Award Finalist in the Leadership in Health Equity CategoryDr. Norris has been recognized…
The NBDF Nevada Chapter Industry Symposium is the place for Nevada residents to learn more about the latest trends, treatments, and medical advancements in the world of bleeding disorders. More info and registration coming in July!
Family Education Weekend brings together families from all over Idaho for a weekend of education and fun. Connect with community and learn more about the latest advancements in care.