Stephanie Lapidow, Executive Director of the Hemophilia Association of New Jersey (HANJ), is leading the charge to protect patients from predatory insurance practices through critical state legislation (S-3818/A-5217). In a powerful op-ed published…
Takeda Pharmaceuticals announced today it will globally discontinue two of its hemophilia treatments: HEMOFIL® M [Antihemophilic Factor (Human), Method M, Monoclonal Purified] and RECOMBINATE® [Antihemophilic Factor (Recombinant)]. General…
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On April 17, 2025, the global bleeding disorders community will unite to commemorate World Hemophilia Day with a groundbreaking theme that shines a spotlight on a critically underserved population. The World Federation of…
Welcome to the Resource Round Up (formerly HANDI Highlights), a periodic communication of the Neil Frick Resource Center (NFRC), designed to connect the bleeding disorders community with practical and readily accessible…
The Neil Frick Resources Center (NFRC) is excited to announce new 2025 scholarship opportunities available to the bleeding disorders community. Kevin Child Scholarship (KCS)The KCS awards $1,000 to eligible individuals living…
Understanding rFIXFC Efficacy and Outcome Data: A Conversation with Dr. Amy Shapiro Description:Join us for an insightful discussion with Dr. Amy Shapiro as we explore the efficacy and real-world outcomes of…
For Immediate Release PRESS CONTACT: Kyla Clark National Bleeding Disorders Foundation 347-920-0047kclark@bleeding.org NBDF Expands Health Access Initiatives …
The topic of bone health in people with bleeding disorders has received more attention and study in recent years, with reports suggesting that people with hemophilia (PwH) and people with von Willebrand disease (PwVWD) experience higher rates of…
Dear Friends,Yesterday, the landscape of public health shifted in ways that deeply affect the bleeding disorders community. As part of a broader restructuring at the U.S. Department of Health and Human Services (HHS), nearly all staff within the CDC…