Awarded/Presented
Tags
CVR
Researchers
Maria E Santaella, PhD(c), MSN, RN-BC; Samantha A Carlson, LMSW; Paxton Mills; Marissa Johns; Cynthia Nichols, PhD
This analysis aimed to describe the time from symptom onset to diagnosis (TTD) by birth sex and bleeding disorder (BD) type, using self-reported data from Community Voices in Research (CVR), a community-based registry supported by National Bleeding Disorders Foundation that collects data from people with bleeding disorders (PWBD).