The NBDF Nevada Chapter Industry Symposium is the place for Nevada residents to learn more about the latest trends, treatments, and medical advancements in the world of bleeding disorders. More info and registration coming in July!
Family Education Weekend brings together families from all over Idaho for a weekend of education and fun. Connect with community and learn more about the latest advancements in care.
Federal: Budget Reconciliation Update On May 22, the House of Representatives approved a budget reconciliation bill designed to advance multiple policy priorities: extending the 2017 tax cuts, increasing…
In a May 27th letter to the hemophilia community, it was confirmed that Spark Therapeutics has been fully integrated into the Roche Group. Spark first became a member of the Roche Group in 2019 with the aim of continuing to advance potential gene…
What is Steps for Living?Steps for Living is a comprehensive, easy-to-navigate educational resource from the National Bleeding Disorders Foundation. Whether you're newly diagnosed, a parent or caregiver, or a long-time community member, it’s built…
Dr. Kari Lavik is a postdoctoral fellow at the University of Michigan in the laboratory of Dr. Jordan Shavit. She received a B.A. in biology from Case Western Reserve University, and her Ph.D. in Biomedical Sciences from The University of Toledo.…
MASAC MinutesMarch 7, 2025Washington, DC 1. Call to Order and Chair Report …