Federal: Budget Reconciliation Update On May 22, the House of Representatives approved a budget reconciliation bill designed to advance multiple policy priorities: extending the 2017 tax cuts, increasing…
In a May 27th letter to the hemophilia community, it was confirmed that Spark Therapeutics has been fully integrated into the Roche Group. Spark first became a member of the Roche Group in 2019 with the aim of continuing to advance potential gene…
What is Steps for Living?Steps for Living is a comprehensive, easy-to-navigate educational resource from the National Bleeding Disorders Foundation. Whether you're newly diagnosed, a parent or caregiver, or a long-time community member, it’s built…
Dr. Kari Lavik is a postdoctoral fellow at the University of Michigan in the laboratory of Dr. Jordan Shavit. She received a B.A. in biology from Case Western Reserve University, and her Ph.D. in Biomedical Sciences from The University of Toledo.…
MASAC MinutesMarch 7, 2025Washington, DC 1. Call to Order and Chair Report …
The U.S. Food and Drug Administration (FDA) has approved the ConcizuTrace™ ELISA Companion Diagnostic (CDx) test, which helps to determine the amount of concizumab-mtci that is circulating in an individual who has taken the product.Concizumab-mtci…
The National Bleeding Disorders Foundation (NBDF) is delighted to announce a new accredited education opportunity for health care providers focused on personalized care for individuals with von Willebrand disease (VWD).“Restoring Control in…