This week, Congress passed a bill, the “One Big Beautiful Bill Act,” that will have widespread impacts on the bleeding disorders community – together with millions of others across the country who get health insurance through Medicaid or the…
Dr. Kyle Davis is a board-certified Pediatric Hematologist-Oncologist at the Indiana Hemophilia and Thrombosis Center (IHTC).
Federal: Action Alert on H.R. 1 (Budget Reconciliation): As of July 1, 200 bleeding disorders advocates had taken more than 300 actions to contact Members of Congress in response to NBDF’s Grassroots Action…
The National Bleeding Disorders Foundation was saddened to learn of the passing of Carol Kasper, MD, a pioneer in the treatment of bleeding disorders, who died on July 8, 2025.Dr. Kasper received her undergraduate degree from the University of…
NBDF is delighted to share our latest Collaborative Learning Exchange (CLE), “Assessing the Wellbeing of Women with Bleeding Disorders: Focus on Bone and Mental Health.” Recorded live and virtually on June 25th, …
Summer is now in full swing, with the sunny promise of more opportunities to get outside and be active. With that in mind, the Neil Frick Resource Center (NFRC) is highlighting resources to encourage better joint health in people with hemophilia and…
Pfizer recently announced results from a clinical study which is currently evaluating HYMPAVZI™ (marstacimab-hncq) for adults and adolescents living with hemophilia A or B with inhibitors. The therapy was approved by the U.S. Food…
In early 2021, a pair of much needed evidence-based guidelines on the diagnoses and management of von Willebrand disease (VWD) were issued by an international group of organizations eager to build consensus on VWD screening and…