Seth Furr is a student at Washtenaw Community College. Seth has completed two summers as a Counselor in Training at Camp Bold Eagle (Holton, MI), a camp for kids with bleeding disorders run by the Hemophilia Foundation of Michigan. He also regularly…
Katelynn lives in Alexis, Illinois, with her adorable puppy, Elsa, and is a graduate of Capri College. She is a licensed cosmetologist in both Iowa and Illinois and runs her own salon business, where she gets to learn, create, and connect every day…
Dr. Xuejie Chen is a postdoctoral fellow in the laboratory of Dr. Darrel Stafford at the University of North Carolina at Chapel Hill. Before joining Dr. Stafford’s lab, she received her Ph.D. degree in Cell Biology from Beijing Normal University, P…
Erin is a fourth year Biological Science and Political Science student at Colorado State University. After being diagnosed with von Willebrand Disease Type 1 at a young age, Erin has spent most of her life deeply involved in her local bleeding…
Naiyila Davis currently lives in Phenix City, Alabama, settling there after moving all over the country due to the military. She graduated from the University of Alabama at Birmingham and works as a zip line guide. She is tasked with safely taking…
Cade Komar is a student from Phoenix, Arizona, currently attending Colorado State University where he is pursuing a dual degree in biomedical engineering and mechanical engineering. Cade was born with Severe Hemophilia A and became involved with the…
Explore the SeriesWe asked community members to share their thoughts on the issues that matter most to them. This video series covers research, access to health care, diagnostic difficulties, transitioning to adulthood and more – all from the…
At the turn of the 21st century, there was great excitement and anticipation of gene therapy as a ‘curative’ treatment for hemophilia A and B patients, particularly among those with moderate-to-severe forms of the disease. However, a recent forum…
Explore the latest updates on federal budget reconciliation, healthcare lawsuits, and state-level policy changes impacting bleeding disorders. Learn how NBDF is advocating for access, funding, and patient protections.Federal: …
An analysis of the My Life, Our Future genetic database found that people with severe hemophilia A who are Black or Hispanic had a higher risk of developing inhibitors. It also found that the risk of inhibitor development was…