Mayra Cantu, from Oswego,Il. I am a symptomatic hemophilia A carrier. I have three sons with severe Hemophilia A. The boys keep me on my toes. I have been involved in the bleeding disorders community for 20 years now. I’m looking forward to this new…
Stacy J. Pechter, MS, BSN, RN, is a hematology-oncology nurse and nursing informatics specialist with more than a decade of involvement in the bleeding disorder community. Living with a rare bleeding disorder, they bring both personal insight and…
Concizumab-mtci (Alhemo®) has received approval from the US Food and Drug Administration (FDA) as a once-daily prophylactic treatment for patients aged 12 years and older with hemophilia A or B without inhibitors.This new approval results…
The National Bleeding Disorders Foundation’s (NBDF) 77th Annual Bleeding Disorders Conference (BDC) is finally here. We like to think of this as a family reunion – whether you’re new to the community or have been attending for years, you’ll be…
Big news! NBDF’s Pathway to Cures portfolio company Spark Biomedical was selected by Wellcome Leap as an awardee of “The Missed Vital Sign” worldwide program. The goal of the program is to demonstrate that routine recording…
The final session of the Bleeding Disorders Conference is always powerful. The community comes together to celebrate those who have made a real difference in the lives of others. This includes the volunteers who go the extra mile, the advocates who…
Just answering a few questions about how your bleeding disorder affects your life can make a huge difference in treatment in care was the message of “Change the World with Your Experience: Your Data!” on Saturday, August 23.The session featured…