Pathway to Cures, NBDF’s venture philanthropy fund, is an investor in Be Biopharma, Inc., a clinical-stage company developing engineered B cell medicines. Be Biopharma recently announced the first participant treated with their therapy BE-101…
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Learn About Anti-TFPI TreatmentA new treatment option for people who have hemophilia A or B with or without inhibitors is called Anti-TFPI. In this 3D video we will show how Anti-TFPI treatment…
Decades of advocacy spearheaded by the World Federation of Hemophilia (WFH) have resulted in a victory for the global bleeding disorders community. The World Health Organization (WHO) Model List of Essential Medicines (EML) has been updated to…
Speakers: Lindsey George, MD; John Morris, PhD; Bill MauritsThis session of the Research Journal Club will focus on gene therapy. Gene therapy for hemophilia A is now commercially available in some countries. While early patient…
Speakers: Maria Santaella, PhD(c), MSN, RN-BC, CPHON; Michael Recht, MD, PhD, MBA; Sammie ValadezDiscover how the National Research Blueprint (NRB) has evolved into the Bleeding Disorders Research Collaborative (BDRC). This session…
Five people who are inspired by the bleeding disorders community are lacing up for an immense physical challenge: running the TCS New York City Marathon on November 2, 2025. They’ll be running across the Verrazano-Narrows Bridge, through the streets…
With the fall scholastic season now in full swing, we thought it would be a great time to share a few back-to-school resources to support students, families, and school personnel. This edition of the Resource Roundup features articles, educational…
While it is generally understood that the social determinants of health (SDOH) are significant factors contributing to an individual’s overall health, research specific to SDOH and its impact upon the bleeding disorders community has been rather…
Speakers: Aaron Blocker, Matt Delaney, Miriam Goldstein, Johanna Gray Description: With open enrollment just around the corner -- and with many changes coming out of Washington DC and state capitols --…
Speakers: Brian Branchford, MD; Ariel LoraineDescription: Explore the experience of factor X deficiency (FX), an ultra-rare bleeding disorder, from understanding mild to severe bleeding, joint complications, and…