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Federal:Government Shutdown (Updated)On November 10th, 8 Senate Democrats joined Republicans to re-open the government. Although Senators were promised a vote on Advanced Premium Tax Credits before their expiration…
Three new documents have been issued by NBDF’s Medical and Scientific Advisory Council (MASAC), which creates recommendations and advisories on current treatment, research matters, and other general health concerns for the inheritable bleeding…
Pathway to Cures, NBDF’s venture philanthropy fund, has added SeraGene to their portfolio of emerging biotech companies addressing unmet needs in the inheritable blood and bleeding disorders community.SeraGene Therapeutics is a pre-clinical stage…
The World Federation of Hemophilia (WFH) recently published an Arabic language version of their booklet Women and Girls with Hemophilia (2023) which is meant to aid outreach and educational efforts around the world, especially for such a classically…
Speakers: Jill Johnsen, MD; Shannon Meeks, MD; Grier Page, PhD; Ken Martin; Erica McLeodExpectant mothers who inherited the DNA change that causes hemophilia A are at high risk for bleeding in childbirth, and babies born with severe…
Speakers: Maria Rohan, RN, BSN; Omar Torres, Takeda Community Education SpecialistsJoin us for a tailored program for patients using HEMOFIL M and RECOMBINATE. This program provides supportive resources to guide patients through the…
NBDF’s inaugural Research Roundtable was held in Washington, D.C. on October 15-16, 2025. The meeting brought together lived experience experts (LEEs), researchers, healthcare providers, and industry leaders in a pre-competitive, product-agnostic…
Web-based registries are essential tools for gathering patient-reported information for research purposes. The National Bleeding Disorders Foundation recognised and responded to the imperative to actively include persons with inheritable bleeding…
Gene therapy has shown promise in clinical trials for patients with haemophilia, but patient preference studies have focused on factor replacement treatments.Read More