This study will collect data from interviews with women who have moderate or severe hemophilia or another congenital bleeding disorder. Participants will be asked to express the impact that a congenital bleeding disorder has on the development and…
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The holiday season is a great time to recognize the many dedicated caregivers in the bleeding disorders community. This edition of the Resource Roundup (RR) includes resources that address everyday challenges universal to all caregivers as well as…
NBDF is excited to announce that its Facts About Inhibitors booklet is now available in an Arabic language version. Using easy-to-understand language, this publication includes important information about how inhibitors develop in people with…
Star Therapeutics has released interim data from its ongoing phase 1/2 clinical trial of VGA039, an investigational therapy von Willebrand disease (VWD). NBDF is sharing this research update to ensure the bleeding disorders community has timely,…
Merika Hawes, MSW, LMSW, is the Hemophilia Social Worker at the Augusta University Pediatric Hemophilia Treatment Center at the Children’s Hospital of Georgia in Augusta, Georgia. Since 2021, she has worked with children, teens, and…
Arthur Long, DPT, OCS is a board-certified orthopedic physical therapy specialist and faculty member at the University of California, San Francisco (UCSF). He teaches orthopedics in the UCSF Doctor of Physical Therapy program…
Caroline Trotter, CPNP-PC/AC, is a pediatric nurse practitioner at the Hemophilia of Georgia Center for Bleeding and Clotting Disorders within Children’s Healthcare of Atlanta and Emory University. She received her Master of Science…
Alice Todaro, PhD is a recipient of the NBDF Judith Graham Pool (JPG) Postdoctoral Research Fellowship. She completed her PhD in Biochemistry and Molecular Biology at CARIM (Cardiovascular Research Institute Maastricht), Maastricht…
Dr. Saurabh Kumar is working as a postdoctoral fellow in Dr. Qizhen Shi’s lab at the Versiti Blood Research Institute, Milwaukee, Wisconsin. He received his Ph.D. from the CSIR-Central Institute of Aromatic and Medicinal Plants/Jawaharlal Nehru…