Merika Hawes, MSW, LMSW, is the Hemophilia Social Worker at the Augusta University Pediatric Hemophilia Treatment Center at the Children’s Hospital of Georgia in Augusta, Georgia. Since 2021, she has worked with children, teens, and…
Arthur Long, DPT, OCS is a board-certified orthopedic physical therapy specialist and faculty member at the University of California, San Francisco (UCSF). He teaches orthopedics in the UCSF Doctor of Physical Therapy program…
Caroline Trotter, CPNP-PC/AC, is a pediatric nurse practitioner at the Hemophilia of Georgia Center for Bleeding and Clotting Disorders within Children’s Healthcare of Atlanta and Emory University. She received her Master of Science…
Alice Todaro, PhD is a recipient of the NBDF Judith Graham Pool (JPG) Postdoctoral Research Fellowship. She completed her PhD in Biochemistry and Molecular Biology at CARIM (Cardiovascular Research Institute Maastricht), Maastricht…
Dr. Saurabh Kumar is working as a postdoctoral fellow in Dr. Qizhen Shi’s lab at the Versiti Blood Research Institute, Milwaukee, Wisconsin. He received his Ph.D. from the CSIR-Central Institute of Aromatic and Medicinal Plants/Jawaharlal Nehru…
Kirsty Hillier, MD, is an Assistant Professor of Pediatric Hematology/Oncology at NYU Grossman School of Medicine and an Attending Physician at Hassenfeld Children’s Hospital at NYU Langone. Dr. Hillier is a physician-scientist dedicated to…
The primary purpose of our project will be to provide education that is specific to adolescent females diagnosed with a bleeding disorder. Most of the information available in the bleeding community is gender specific to males, age specific to…
Federal:Fiscal Year 2026 Funding Update On November 12, after 43 days and the longest government shutdown in history, legislation was passed to fund most federal agencies at current levels through January 30.…
CSL recently announced the publication of five years’ worth of data from their HOPE-B clinical trial program, which has been investigating the company’s hemophilia B gene therapy Hemgenix® (etranacogene dezaparvovec). NBDF is sharing this research…
On December 4, 2025, Representatives Kean (R-NJ), Barragán (DCA), Miller-Meeks (R-IA), Auchincloss (D-MA), Fitzpatrick (R-PA), and Watson-Coleman (DNJ) reintroduced the Help Ensure Lower Patient (HELP) Copays Act to make necessary…