The commercialization of hemophilia AAV gene therapies in recent years has created a steep learning curve for clinicians, patients, and other stakeholders in the bleeding disorders community. As a novel treatment unlike any that has come before,…
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Obtenga información sobre el tratamiento anti-IVFTEl tratamiento anti-IVFT constituye una nueva opción para personas que tienen hemofilia A o B, con o sin inhibidores. En este…
Angela Sommer is a development specialist I at the National Bleeding Disorders Foundation, where she manages the foundation’s peer-to-peer fundraising campaigns, the TCS New York City Marathon and other endurance event teams, and supports corporate…
Dr. Boles is currently a hematology and oncology fellow with the University of North Carolina at Chapel Hill, where he received both his BS and MD. His fellowship mentor at UNC will be Dr. Nigel Key. Also involved in Dr. Boles' training will be Dr.…
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Federal:Government Shutdown (Updated)On November 10th, 8 Senate Democrats joined Republicans to re-open the government. Although Senators were promised a vote on Advanced Premium Tax Credits before their expiration…
Three new documents have been issued by NBDF’s Medical and Scientific Advisory Council (MASAC), which creates recommendations and advisories on current treatment, research matters, and other general health concerns for the inheritable bleeding…
Pathway to Cures, NBDF’s venture philanthropy fund, has added SeraGene to their portfolio of emerging biotech companies addressing unmet needs in the inheritable blood and bleeding disorders community.SeraGene Therapeutics is a pre-clinical stage…
The World Federation of Hemophilia (WFH) recently published an Arabic language version of their booklet Women and Girls with Hemophilia (2023) which is meant to aid outreach and educational efforts around the world, especially for such a classically…