The World Federation of Hemophilia (WFH) recently published an Arabic language version of their booklet Women and Girls with Hemophilia (2023) which is meant to aid outreach and educational efforts around the world, especially for such a classically underserved subgroup. Historically, women and girls affected by hemophilia have experienced protracted delays in securing an accurate diagnosis and care that takes bleeding disorders into full account.
The comprehensive booklet covers the genetics and inheritance patterns of hemophilia, the full spectrum of bleeding symptoms experienced by affected women and girls, screening and diagnosis, family planning, labor and delivery, treatments plus surgical options for menorrhagia, and psychosocial/quality of life issues.
This publication is an excellent resource for both affected women and girls, caregivers, and health care providers who can utilize it to help inform shared decision making with their patients. The need for clear and easily accessible online information in Arabic is acute, including reliable content relevant to healthcare, bleeding disorders, and other chronic conditions. According to the United Nations, Arabic is spoken by more than 450 million people globally and holds official status in nearly 25 countries. However, only 3% of online content is available in Arabic, restricting access for millions.
Access the Arabic language version of Women and Girls with Hemophilia on WFH’s eLearning Platform which is also available to download in PDF.
