Describe the self-reported comorbidities (SRC) in PWBD, using data from Community Voices in Research (CVR), a registry aimed at collecting the experience of persons affected by these disorders and supported by National Bleeding Disorders Foundation.…
For inquiries, contact Samantha Carlson, LMSW, Director of Research: scarlson@bleeding.orgLearn More
We need your help again! Earlier this week, the Administration announced drastic changes and reductions to the federal health programs that support the bleeding disorders community. We talked about the importance of these…
Join us for an exclusive look at the latest breakthroughs in women's bleeding and thrombotic disorders research. In this interactive session, we bring together experienced researchers, new research fellows, and lived experience experts (LEEs) to…
Join us for a groundbreaking exploration of small interfering RNA (siRNA) technology and its transformative potential in hemophilia treatment. In this cutting-edge session, leading researchers and clinical experts will unveil how siRNA…
Bio.News has published an in-depth feature on NBDF's World Hemophilia Day initiatives, highlighting our advocacy for women and girls with bleeding disorders. The article includes powerful quotes from Phil Gattone and Dawn Rotellini…
Hemophilia News Today has featured the National Bleeding Disorders Foundation in its coverage of World Hemophilia Day 2025. The article highlights NBDF's participation in the global "Access for all: Women and girls bleed too"…
Head to St James Academy and step inside for a delightful evening filled with food, music and an exciting silent auction! All money raised will be split between NBDF and Midwest Hemophilia! Music by HeadBangin' Twang featuring award winning Ryan…
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