Awarded/Presented
Tags
CVR
Researchers
M. Bloomberg, C. Nichols, M. E. Santaella, University of Miami Hemophilia Treatment Center, Miami, FL; and National Bleeding Disorder Foundation
Describe the self-reported comorbidities (SRC) in PWBD, using data from Community Voices in Research (CVR), a registry aimed at collecting the experience of persons affected by these disorders and supported by National Bleeding Disorders Foundation.