Federal Updates:2025 Washington Days Last week, over 400 advocates from the bleeding disorders community took to Capitol Hill to talk with their legislators and their staff about issues important to the…
MASAC MinutesSeptember 14, 2024Atlanta, GA 1. Call to Order Dr. DunnDr. Dunn…
Webinar DescriptionJoin NBDF for an exclusive first look at the transformation of our Health Access and Strategic Innovation (HASI) team. In this webinar session, the newly rebranded HASI team will unveil their enhanced identity and…
Let’s Talk About The Importance of Participating in ResearchDescription:For many in the bleeding disorder community, research is an important subject, but not everyone wants to participate in research. In this webinar, we will…
The National Bleeding Disorders Foundation (NBDF) is proud to share its latest work on health equity, diversity, and inclusion, published in Health Equity (Vol. 9, No. 1). This research highlights the barriers…
Stephanie Lapidow, Executive Director of the Hemophilia Association of New Jersey (HANJ), is leading the charge to protect patients from predatory insurance practices through critical state legislation (S-3818/A-5217). In a powerful op-ed published…
Takeda Pharmaceuticals announced today it will globally discontinue two of its hemophilia treatments: HEMOFIL® M [Antihemophilic Factor (Human), Method M, Monoclonal Purified] and RECOMBINATE® [Antihemophilic Factor (Recombinant)]. General…
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On April 17, 2025, the global bleeding disorders community will unite to commemorate World Hemophilia Day with a groundbreaking theme that shines a spotlight on a critically underserved population. The World…
Welcome to the Resource Round Up (formerly HANDI Highlights), a periodic communication of the Neil Frick Resource Center (NFRC), designed to connect the bleeding disorders community with practical and readily accessible…